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Raising an Adult (in Training)

By Jamie Roney September 30, 2020

I want my daughter to be prepared for the world when she grows up, and that includes taking charge of her CF. She is only 4 years old, but it’s never too early to get her ready to take on her CF care by herself.

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  1. How Do You Decide What Is Worth the Risk of COVID-19?

    By Breck Gamel October 8, 2020

    Deciding what activities are safe enough for my family has been daunting during this pandemic. But with CF, I’m reminded that I’ve been doing this for years and I’m grateful for a tool to help me think through my decisions and make the best choices for my family.

  2. Why I Chose to Go Back to School in Person

    By Caroline Kent September 23, 2020

    My school gave students a choice of how they want to go back to school: virtually or in person. After considering what made sense for my CF, learning style, and mental health, I decided to attend school in person.

  3. Having a Newborn With CF During COVID-19

    By Jake Ward September 16, 2020

    The recent birth of my son brought me news that I never expected -- a diagnosis of cystic fibrosis.

  4. My Return to In-Person Clinic Visits

    By Michelle Herpolsheimer September 14, 2020

    After several months of telehealth visits with my care team, I returned to the clinic for an in-person visit. Because of COVID-19, some aspects of the visit were different than before.

  5. Putting Convenience Before the Vulnerable

    By Jenny Livingston August 31, 2020

    Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.

  6. Wearing a Mask is Not About You

    By Gina Alejandra August 24, 2020

    It’s troubling that many people without chronic illness feel wearing a mask is too much of an inconvenience for them.
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