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Twin Sisters With CF Find Support in Each Other

By Susan Dowling & Melissa Jones July 31, 2020

On National Sisters Day, twin sisters with cystic fibrosis share their special bond and hope that all people with CF can find that special “person” in their lives.

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  1. The Pains of Pain Management

    By Joey Disser October 9, 2018

    As a medical professional who has cystic fibrosis, I have experienced both sides of pain management and chafed under the new rules for prescribing pain medications brought about by a nationwide opioid crisis. Despite having to add yet another doctor to my long list of providers, a trip to a pain management specialist wasn’t as bad as I thought.

  2. Demystifying the Colonoscopy

    By Amy Braid September 20, 2018

    As someone with cystic fibrosis, Lynch Syndrome, and CF-related diabetes, preparing for a colonoscopy can be a challenge. Fortunately, I’ve become very well-versed in how colonoscopies work and how to prepare for them over the past 10 years.

  3. When Lungs Collapse

    By Hogan Reed September 10, 2018

    I have had two collapsed lungs in three years. Here’s what I learned.

  4. Why CF Is More Than a Lung Disease

    By Jennifer Sturgeon August 1, 2018

    Although cystic fibrosis is often considered to be primarily a lung disease, it is actually so much more.

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