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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Carter Jones wearing a black suit and smiling outside

BLOG

Finding Strength in Vulnerability

The physical and emotional toll of CF can sometimes make me feel isolated from my peers. But I’ve learned being vulnerable about my struggles can create stronger relationships that make me feel supported and loved.

A headshot of Carter Jones
| 4 min read
Bianca smiling with her husband, daughter, and son who is wearing a graduation robe and cap.

BLOG

Dear Moms of Children With CF

To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.

A selfie of Bianca and her son
| 4 min read
Brogavantty smiling next to a bouquet of yellow flowers

BLOG

Coping With Unexpected Health Complications

For so long, my identify was defined by beating the odds and achieving a successful career despite having CF. But recently, health complications have forced me to create a new identity focused on self-care. With the help of my support system, I am slowly adapting to this new chapter. 

Brogavantty Dunwoody
| 6 min read
Rebecca standing in a decorative fountain while traveling abroad, holding her arms out and smiling

BLOG

Tips For Traveling Abroad With CF

After traveling to over 20 countries, I’ve learned that cystic fibrosis doesn’t have to hold me back from experiencing life abroad. Here are some tips for traveling with CF.

A headshot of Rebecca Linam
| 8 min read
James laying on the couch with his dog

BLOG

Coming Full Circle: Becoming a Genomics Scientist with CF

I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another. 

James-Lawlor-Headshot
| 10 min read
A selfie of Frederick sitting in his car

BLOG

How CF Influenced My Career

I had a number of professional aspirations while growing up, but cystic fibrosis caused me to play it safe. Looking back, I wonder how my life would have been different if I didn’t let CF limit me. 

Frederick Merz taking a selfie in front of the Okayama Castle
| 6 min read