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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. Realizing CF Didn’t Make My Goals Impossible

    By Jennifer Griego December 18, 2019

    After fighting an awful infection, I had written off my dreams as ‘impossible.’ But after encouragement from my family and plenty of training, I made it my mission to not let CF stand in my way.

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  2. Running Outside Saved My Lung Health and Improved My Well-Being

    By Morgan Barrett November 22, 2019

    Running amidst the beauty of the Kansas countryside helps improve my lung function and mood and has even kindled a passion inside me for the environment.

  3. Keeping Active When You Are Not Feeling Your Best

    By Meagan Tenyer June 18, 2019

    When I am sick, I find creative ways to exercise, even if it’s just walking a short lap around the house to keep my strength up. I also make sure that I eat well and have a game plan for getting good food if I get sent to a hospital.

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  4. Getting in Shape: How CF Led Me to My Dream Job

    By James Richardson March 28, 2019

    Growing up with cystic fibrosis made me feel different and like I had a lot to overcome. The road that led me to my own personal training business showed me that CF has shaped me in good ways.

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  5. Celebrating My 30th Birthday With a 24-Hour Fitness Challenge

    By Josh Llewellyn-Jones July 13, 2017

    When I turned 29 last year, I told my family that I was going to attempt a 24-hour fitness challenge to mark my 30th birthday -- an age I wasn’t supposed to reach. Despite having cystic fibrosis, I am determined to inspire hope and highlight the importance of fitness when it comes to CF.

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  6. How Yoga Helped Me Manage My CF

    By Aimee Lecointre June 21, 2017

    Although it took me a while to gravitate toward yoga, I have found that it really helps me manage my mental and physical health. In honor of International Yoga Day on June 21, I share the benefits of practicing yoga and demonstrate my favorite upper body stretches.
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