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What We Taught Our Daughter Before She Started School

By Jamie Roney October 07, 2021

My daughter, Desi, recently started school. Here’s what we did to prepare her to manage her cystic fibrosis and navigate the COVID-19 pandemic -- and what we learned in the process.

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  1. Coping With the Loss of My Brother to CF

    By Melissa Shiffman February 5, 2019

    Losing my brother when I was just a teenager left me feeling isolated in my grief. There was no internet or social media in the 1980s to connect with other people with CF. Therapy and time eventually allowed me to cope with his loss, open up to family and friends, and invite them to share in my memories.

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