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What We Taught Our Daughter Before She Started School

By Jamie Roney October 07, 2021

My daughter, Desi, recently started school. Here’s what we did to prepare her to manage her cystic fibrosis and navigate the COVID-19 pandemic -- and what we learned in the process.

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  1. Honoring My Partner’s Legacy

    By Danielle Doerfler August 17, 2020

    My partner, Jan, was a CF fighter for 50 years. She lived an amazing life and celebrated her lung transplant to the fullest. She passed away a few months ago and I’m honored to keep her fight against CF going strong.

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