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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. Watch the Vlog: 2 Sisters Talk Five Feet Apart

    By Bethany Kokoski & Mackenzie Kokoski March 5, 2019

    Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.

  2. That Time We Went Viral and Where We Actually Are Today

    By Jennifer Jones & Rob Ronnenberg March 29, 2018

    You may or may not have seen the video of the woman taking her first breath as her breathing tube is removed following her lung transplant. That was my fiancée, Jennifer.

  3. Meet Our CFF.org Homepage Heroes: The Weyandt Family

    By Ashling Knight February 1, 2018

    Hear about our homepage hero, Jeremy Weyandt, and his journey to a lung transplant.

  4. Meet Our CFF.org Homepage Heroes: The Egan Family

    By Ashling Knight July 6, 2017

    The Egan family, currently featured on the homepage of CFF.org, share more about their sassy little girl, how much their support system means to them, and what inspires them in the search for a cure for cystic fibrosis.

  5. Meet Our CFF.org Homepage Heroes: The Woods Family

    By Ashling Knight May 4, 2017

    The Woods family, currently featured on the homepage of CFF.org, share their favorite part of Great Strides walk day, their proudest moments as parents of a child with CF, and more.

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