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The Unseen Struggles of CF

By Lindsey Tipsword April 13, 2021

The physical symptoms of cystic fibrosis can be debilitating. But the emotional trauma brought on by hurtful comments, financial burdens, and anguish my loved ones have faced because of my disease has been just as painful.

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  1. What Does “Better” Mean on Trikafta?

    By Elizabeth Amber November 21, 2019

    The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.

  2. I Have Two Nonsense Mutations. Here’s What a Path to a Cure Means to Me

    By Chuck Fox October 30, 2019

    When the news of the TrikaftaTM approval came out, I was simultaneously excited for people with CF that would benefit and disappointed that another new medicine is passing me by. But, hearing about the next wave of research into a cure for ALL people with CF has me looking forward to the future.

  3. Let’s Talk About It: Complementary and Alternative Medicines and Supplements

    By Hanna Phan, PharmD, FCCP, FPPAG March 18, 2019

    As a CF pharmacist, I’ve received many questions about complementary and alternative medications and supplements over the years. Although I am admittedly not the first person to “jump at the idea,” I always make sure to stay informed about available products and listen to my patients without judgement so that we can partner together to develop the best treatment plans for them.

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