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Understudied Areas in CF Get Extra Attention at NACFC

By Jacqui Sjoberg January 14, 2021

I could fill a book with all the things I learned at the virtual North American Cystic Fibrosis Conference this year, but I am especially glad that there was a focus on diversity, gender health, and sex-based differences in CF.

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  1. The Wait For My Son’s Trikafta

    By Misty Roussa March 26, 2020

    I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

  2. Trikafta Shattered My Negative Attitude and Expectations

    By Vincent Donato January 23, 2020

    Having already been underwhelmed by Orkambi® and Symdeko®, I was skeptical about whether the triple-combination therapy would live up to the hype. However, after a month of being on Trikafta®, I feel improvements in my lung function, weight, and overall energy.

  3. What Does “Better” Mean on Trikafta?

    By Elizabeth Amber November 21, 2019

    The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.

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