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Understudied Areas in CF Get Extra Attention at NACFC

By Jacqui Sjoberg January 14, 2021

I could fill a book with all the things I learned at the virtual North American Cystic Fibrosis Conference this year, but I am especially glad that there was a focus on diversity, gender health, and sex-based differences in CF.

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  1. How I Found Acceptance for My Trikafta Weight Gain

    By Lauren Bombardier Weeks November 20, 2020

    As a person with cystic fibrosis, I struggled all my life to gain weight, despite eating a high-calorie, high-fat diet. Once I started Trikafta® and my weight increased to normal levels, I had to learn a new, healthier way to eat.

  2. My Son's Feeding Therapy Journey

    By Melissa Thorpe November 4, 2020

    My son has had a problem with eating ever since he was born prematurely and diagnosed with cystic fibrosis. After a lot of stress and anxiety about reaching his weight goals, we finally enlisted an occupational therapist, who helped him learn to love eating.

  3. Dealing With Body Issues as a Teen With CF

    By Gabrielle Hagen August 29, 2018

    Although your teenage years can be difficult, they ultimately help mold you into the person you are meant to be -- especially when you have a chronic disease, like cystic fibrosis.

  4. Changing How I Eat Post-Transplant

    By Jenavese Armstrong August 7, 2018

    After my lung transplant, I discovered I couldn’t keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.

  5. Food for Thought: Lessons From My Son’s Road to a G-Tube

    By Jaclyn Strube June 21, 2018

    I’ve written about how tough a decision it was to get my son, Major, a gastrostomy tube. I also wrote about the benefits it has provided. Here’s what the process taught me.

  6. I'm Not Lucky to Have Difficulty Gaining Weight

    By Bradley Dell June 19, 2018

    People often envied my skinniness, but they didn’t realize that CF made it difficult for me to want to eat -- or to get enough nutrients from -- the food that I did.

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