CF Community Blog

Featured

The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

Filter Posts By

Clear Filters

  1. I Better Start Saving for 100 Days in Hawaii

    By Susie Rider June 7, 2016

    When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn’t be around to see it. Today, my fears have dwindled.

  2. WATCH: New Developments in Drugs to Reduce Infection, March 2016

    By Christina Roman March 29, 2016

    Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.

  3. WATCH: New Developments in Drugs to Restore Airway Surface Liquid, March 2016

    By Christina Roman March 15, 2016

    Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.

  4. WATCH: New Developments in Drugs to Reduce Inflammation, Feb. 2016

    By Christina Roman February 29, 2016

    Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.

  5. WATCH: New Developments in Restoring CFTR Function, Feb. 2016

    By Christina Roman February 17, 2016

    Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis.

  6. The Heart of Science

    By Katrina Young December 23, 2015

    The radio stations are filled with holiday music, but as 2015 comes to a close, I find myself listening to an entirely different playlist. In my mind, there are not only songs that make me reflect on the path that my family has so carefully traveled so far, but also the hope and the promise of all the good things yet to come.
More Posts View All Posts

Follow Us On

Blog RSS

Interested in sharing your story on the blog?

Learn More