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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Annaka Haynes smiling and wearing blue scrubs with a stethoscope around her neck

BLOG

Becoming a Nurse to Advocate for Patients

Living with CF means I quickly became familiar with the patient side of the health care field. My experiences in the hospital have motivated me to become the kind of nurse that listens to and advocates for their patients. 

A headshot of Annaka Haynes
| 6 min read
Sydney Reichart looking off camera at sunset in the desert

BLOG

Finding Balance With Cystic Fibrosis and Dating

Take it from me, dating with cystic fibrosis can be hard — from not having the energy to keep up with our partners to dealing with all the not-so-sexy aspects of the disease. But it’s important to not settle for anything less than the love and support we deserve.

Sydney Reichart headshot
| 10 min read
A black-and-white photo of Schyler standing in front of a mural of flowers

BLOG

Finding Hope: Life Without CFTR Modulators

For those of us who can’t take modulators, it can sometimes feel like you’ve been left behind. But I have found hope and motivation by participating in clinical trials.

A selfie of Schyler Kline outdoors
| 5 min read
Carter Jones wearing a black suit and smiling outside

BLOG

Finding Strength in Vulnerability

The physical and emotional toll of CF can sometimes make me feel isolated from my peers. But I’ve learned being vulnerable about my struggles can create stronger relationships that make me feel supported and loved.

A headshot of Carter Jones
| 4 min read
Bianca smiling with her husband, daughter, and son who is wearing a graduation robe and cap.

BLOG

Dear Moms of Children With CF

To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.

A selfie of Bianca and her son
| 4 min read
Brogavantty smiling next to a bouquet of yellow flowers

BLOG

Coping With Unexpected Health Complications

For so long, my identify was defined by beating the odds and achieving a successful career despite having CF. But recently, health complications have forced me to create a new identity focused on self-care. With the help of my support system, I am slowly adapting to this new chapter. 

Brogavantty Dunwoody
| 6 min read