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Being Black in the CF Community

By Kadeem D’Shai Morgan June 26, 2020

As a black man with cystic fibrosis, I am in a minority group within a minority group. I waited my whole life to find someone I could easily relate to until I happened upon a Facebook group for post-transplant patients.

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  1. Find Out What Therapies We Are Researching for People With Rare and Nonsense Mutations

    By Genevieve Maul December 5, 2017

    Although 90-95 percent of people with cystic fibrosis are expected to benefit from CF transmembrane regulator (CFTR) modulators, 5 percent of the population will still need alternative therapies to address the underlying cause of their disease. Learn more about the research that the Cystic Fibrosis Foundation is doing to find treatments for the 5 percent of people with these rare and nonsense mutations.

  2. Scientists Explore Potential and Challenges of New Technologies at Savannah Research Conference

    By Katherine Tuggle, Ph.D. July 25, 2016

    For the first time, the Cystic Fibrosis Foundation invited non-CF experts to its annual research conference to meet with CF researchers. The conference -- New Technologies Advancing Toward a One-Time Cure -- in Savannah last month focused on the challenges being faced in gene editing, gene delivery and stem-cell biology and laid the foundation for new collaborations.

  3. Clinical Researchers Prep for Record Year of Trials

    By Patty Burks, M.A., RN, CCRC May 5, 2016

    With a record 45 clinical trials either ongoing or starting up in 2016, research coordinators and principal investigators throughout the Therapeutics Development Network took time out in San Antonio recently to discuss clinical research and put attendees through boot camp.

  4. Opening Doors to CF Clinical Research

    By Christina Roman October 9, 2015

    There have never been as many new CF drugs in development as there are today. In the second plenary at NACFC, Dr. George Retsch-Bogart outlined the progress we’ve made, the road ahead and the changes needed to make it all possible. Read on for my key takeaways.

  5. The Future of Personalized Medicine

    By Katherine Tuggle, Ph.D. October 8, 2015

    There’s a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now and what the future holds. Read on for a quick recap.

  6. Register Today to Learn More About the Latest in CF Research and Care

    By Susan Schept September 30, 2015

    Hear from John P. Clancy, M.D., the first plenary speaker at this year’s NACFC, about recent advances in personalized medicine, which could allow clinicians to better tailor treatment to the individual with CF.
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