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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. Getting in Shape: How CF Led Me to My Dream Job

    By James Richardson March 28, 2019

    Growing up with cystic fibrosis made me feel different and like I had a lot to overcome. The road that led me to my own personal training business showed me that CF has shaped me in good ways.

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  2. Why I Decided to Take Time Off From Work

    By Jackie Price February 27, 2018

    Taking time off from work to focus on your health is never an easy choice. Here is the story about how I made this decision, as well as some tips and advice for navigating working with cystic fibrosis.

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  3. Understanding the Science of CF Gives Me a Sense of Control

    By Tré LaRosa November 29, 2017

    As both a researcher and a person with cystic fibrosis, it is an amazing experience to watch cells with rare CF mutations respond to drugs in the lab. Knowing the scientific basis for my treatments not only gives me a sense of control, but it encourages me to do my treatments.

  4. I’m a Fire Chief, Paramedic, Army Combat Medic, and Student … and I Have CF

    By Rick Stevens April 25, 2017

    Because I have cystic fibrosis, people are often shocked when I tell them that I’m a fire chief and an in-flight paramedic. Although the road has been difficult, I am driven to test my potential and fulfill my dreams.

  5. Why I Kept My CF a Secret at Work

    By Willem Wery April 11, 2017

    Throughout my 31-year-long career, I kept my cystic fibrosis a secret. Let me tell you why.

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  6. My Health for Theirs: A Health Care Provider’s Cautionary Tale

    By Chad Lucci, MS, PA-C October 17, 2016

    I gravitated toward a career in health care almost without thinking about it. It has been rewarding, but it has cost me too.

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