The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
![A black-and-white photo of Schyler standing in front of a mural of flowers](/sites/default/files/styles/image_card/public/2024-03/Schyler-Kline-Featured-Image.png?h=306f70c4&itok=jpIvqeas)
For those of us who can’t take modulators, it can sometimes feel like you’ve been left behind. But I have found hope and motivation by participating in clinical trials.
![A selfie of Schyler Kline outdoors](/sites/default/files/styles/author_thumbnail/public/2024-03/Schyler-Kline-Headshot.png?itok=9yVNnRhf)
![Annaka Haynes smiling and wearing blue scrubs with a stethoscope around her neck](/sites/default/files/styles/image_card/public/2024-03/Annaka-Haynes-Featured-Image.png?h=8abcec71&itok=SoLCrNUE)
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Living with CF means I quickly became familiar with the patient side of the health care field. My experiences in the hospital have motivated me to become the kind of nurse that listens to and advocates for their patients.
![A headshot of Annaka Haynes](/sites/default/files/styles/author_thumbnail/public/2024-03/Annaka-Haynes-Headshot.png?itok=jkLbgcQr)
![Sydney Reichart looking off camera at sunset in the desert](/sites/default/files/styles/image_card/public/2024-03/Sydney-Reichart-Featured-Image.png?h=8abcec71&itok=da391QaJ)
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Take it from me, dating with cystic fibrosis can be hard — from not having the energy to keep up with our partners to dealing with all the not-so-sexy aspects of the disease. But it’s important to not settle for anything less than the love and support we deserve.
![Sydney Reichart headshot](/sites/default/files/styles/author_thumbnail/public/2021-12/Sydney-Reichart-Headshot.jpg?itok=I0-60dkv)
![A black-and-white photo of Schyler standing in front of a mural of flowers](/sites/default/files/styles/image_card/public/2024-03/Schyler-Kline-Featured-Image.png?h=306f70c4&itok=jpIvqeas)
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For those of us who can’t take modulators, it can sometimes feel like you’ve been left behind. But I have found hope and motivation by participating in clinical trials.
![A selfie of Schyler Kline outdoors](/sites/default/files/styles/author_thumbnail/public/2024-03/Schyler-Kline-Headshot.png?itok=9yVNnRhf)
![Carter Jones wearing a black suit and smiling outside](/sites/default/files/styles/image_card/public/2024-03/Carter-Jones-Featured-Image.png?h=8abcec71&itok=CctiW8E6)
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The physical and emotional toll of CF can sometimes make me feel isolated from my peers. But I’ve learned being vulnerable about my struggles can create stronger relationships that make me feel supported and loved.
![A headshot of Carter Jones](/sites/default/files/styles/author_thumbnail/public/2024-03/Carter-Jones-Headshot.png?itok=q81h8pRJ)
![Bianca smiling with her husband, daughter, and son who is wearing a graduation robe and cap.](/sites/default/files/styles/image_card/public/2024-02/Bianca-Maldonado-Dequin-Featured-Image.png?h=8abcec71&itok=5BpOP4-S)
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To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
![A selfie of Bianca and her son](/sites/default/files/styles/author_thumbnail/public/2023-09/Bianca-Maldonado-Dequin-Headshot.png?itok=1AYd9Vph)
![Brogavantty smiling next to a bouquet of yellow flowers](/sites/default/files/styles/image_card/public/2024-03/DSC_1311_KK.jpg?h=58c8a5e7&itok=c-0hlcT7)
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For so long, my identify was defined by beating the odds and achieving a successful career despite having CF. But recently, health complications have forced me to create a new identity focused on self-care. With the help of my support system, I am slowly adapting to this new chapter.
![Brogavantty Dunwoody](/sites/default/files/styles/author_thumbnail/public/2022-05/Brogavantty-Dunwoody-Headshot.png?itok=jegxsq0m)