Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Toni was diagnosed with cystic fibrosis in 1973 at the age of one. She earned a bachelor's degree in English with a concentration in journalism from Central Connecticut State University, and worked in the newspaper, advertising and dot-com industries until she retired from the workplace at the age of 30 to focus on her health. Toni began volunteering for the CF Foundation in high school and college, and has been involved in the online CF community for more than 20 years. She runs a private online support group for women with CF and continues to raise funds for the Foundation through her Great Strides team, Toni's Titans, which has cumulatively raised over $10,000. Toni and her husband Ken live with their two cats, Milo and Molly, in central Connecticut. Follow Toni on TheraPink or email her at firstname.lastname@example.org.
Tré earned a bachelor’s degree in biochemistry with minors in mathematics and biology at the University of Kentucky in 2016. He first worked in a CF lab during his undergraduate career at UK and in Dr. J.P. Clancy’s lab at Cincinnati Children’s Hospital Medical Center after graduation. He is a co-author of the article “Detection of CFTR function and modulation in primary human nasal cell spheroids” in the Journal of Cystic Fibrosis. He frequently exercises to stay in shape and writes at trelarosa.com.
Vincent is a New York native who was first diagnosed with CF when he was 6 months old. In addition to speaking over five languages, Vincent earned his bachelor's degree in Marketing from Hofstra University and a master's degree in Accounting from Molloy College. When he isn't working as an accountant, Vincent enjoys spending time with family and friends, working out, binging on his favorite TV shows, and cheering for the New York Rangers. Follow @vincenz99 on Instagram and @vincenzo99 on Twitter.
Wendy is a young adult with CF who is finding her way in the world. She is a passionate writer and advocate for CF awareness, and is currently training her service dog, Finn, for when she needs a little extra support throughout the day. In her free time, Wendy enjoys music, traveling, and reading, and credits her CF for giving her more drive to love life and all it has to offer. Follow Wendy on her blog, The Living, Breathing Wendy.
Dr. A. Whitney Brown is a cystic fibrosis physician and director of the adult CF program at Inova Fairfax Hospital in Falls Church, Va. In addition to CF care, Dr. Brown also is a lung transplant doctor. Dr. Brown and her team are active with the Metro
DC CF Foundation chapter and love to attend chapter events -- especially those with dancing. You can find her at email@example.com.
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