Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Austin named his son, who has cystic fibrosis, after his paternal grandfather, Jack. All three are left-handed, also known as “southpaws.” Austin, along with a left-handed business partner, run a commercial real estate company called Southpaw Realty. He lives in Houston with his wife, Kyra, his son, Jack, and their dog, Frazier. Follow Austin on Twitter @SouthpawRE.
Autumn is 40 years old and currently lives in Atlanta, where she was born and raised, with her husband, Joey and rescue chocolate lab, Lexie. Autumn works as a physical therapist assistant and a trained rehab instructor at her local Pilates studio, and
enjoys going to Braves games, concerts, and spending time with friends and family. Diagnosed with cystic fibrosis later in life, Autumn is grateful for research and funding for drugs like Kalydeco® that have kept her healthy.
Bethany was diagnosed with CF at 4 months old. A current resident of Spring Hill, Tenn., she grew up near Cleveland, Ohio, in the little town of LaGrange, but has called Nashville home for the last 12 years. Bethany made sports and exercise her life and, at 19 years old, became a professional dancer for the NBA's Cleveland Cavaliers. She carried health and wellness into her career as a full-time elementary physical education teacher, graduating from Middle Tennessee State University with a B.S. in human health and performance. She is also a part-time certified integrative nutrition Health Coach and her company, Breathe, Love, & Be Well (@breathelovebewell), is where she mentors others on how to live a healthy lifestyle. Bethany is the oldest of three sisters, and her youngest sister, Mackenzie, has CF as well. They encourage each other and fight together! You can learn more about their journey by following them on Instagram @sister_cyster.
Bob served in the U.S. Marine Corps and is a graduate of the University of Maryland. For the last 30 years, he has been an entrepreneur. Ever since his daughter, Jennifer, was born with CF, Bob has been very active in the Maryland Chapter and an active Board member. Bob and his team organized the first Great Strides walk in Annapolis, Md., which is consistently ranked among the top ten in the country. In addition, Jennifer’s Journey has been honored as the number one team in Maryland for fundraising. You can follow Jennifer’s Journey on Facebook, visit the site for Bob’s climb up Mount Kilimanjaro, or email him at firstname.lastname@example.org.
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