Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Carl recently retired from a 50-year career in housing policy, programs, development, and finance. He resides in Vienna, Va., with his wife, Judy, who he has been married to for 40 years. He and Judy raised three amazing children -- Chris, Chad (who has cystic fibrosis), and Cassandra -- all of whom are now married to wonderful spouses and have blessed them with 5 incredible grandchildren. Carl and his family have been involved with the Foundation for over 30 years. In addition to focusing his fundraising efforts on Chad's Great Strides team alongside his wife, Carl serves on the board of the Metro D.C. Chapter and is currently Outreach Chairman, focusing on care centers and advocacy efforts. Carl looks forward to dedicating more time to the Foundation's efforts in retirement while continuing to serve on a nonprofit community development board, participate in church ministries, and mentor young professionals. Follow Carl on Twitter.
Chad is 40 years old and currently lives in Denver as a physician assistant with his wife, Mari, son, Jackson, boxer, Hendrix, and bulldog, Meatloaf. He was diagnosed with CF at 5 months old, and has overcome countless setbacks and exacerbations to live a quality and productive life. He and his family are avid hikers and bicycle riders, and have embraced the Colorado lifestyle since moving from Chicago. He plays multiple musical instruments, enjoys reading, and is a freelance writer. Check out his personal blog at www.whatalungstrangetrip.com.
Chad is an award-winning grill master and amateur Lego builder who was born in 1981. He lives in Alexandria, Va., with his wife and two sons. Chad graduated from Wittenberg University, where he tended bar, traveled to Africa, and earned degrees in both history and African studies. In addition to being chair of Tomorrow's Leaders for the Cystic Fibrosis Foundation Metropolitan Washington, D.C. Chapter, he is a member of the Adult Advisory Council and National Advocacy co-chair for the CF Foundation. In addition he participates in the weekly vlog Staying Salty. You can find him playing baseball with his kids, doing CF treatments in his basement, and on social media. Follow @cjriedy on Twitter or Instagram.
Chelsea was struck with wanderlust, a go-getter with a zest for life who has never let CF stop her. Chelsea graduated college cum laude with a BA in psychology and has channeled that passion for helping others into everything she does. You can
find her teaching yoga, sailing, flying to a new country, or showing those around her that cystic fibrosis does not define what she is capable of. Chelsea works very closely with the amazing research doctors at Johns Hopkins helping to raise funds
for CF research. You can follow her journey and adventures living with CF on Instagram or Facebook.
Cheriz lives with her husband, Andrew, near Peoria, Ill., where she is a freelance blogger and stay-at-home mom. Cheriz has taken on several volunteer positions with the CF Foundation, including serving on the Partnerships for Sustaining Daily Care Champions Committee, Community Voice, and the Adult Advisory Council. Cheriz and Andrew have a national Great Strides team and co-lead several CF events fundraising in their community. They are foster parents, and in their spare time, they work on their family blog, MoreThanDNA.org, to spread awareness and CF education.
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