Holly Seay

Holly Seay
Adult with CF
Holly-Seay-Headshot

Holly was diagnosed with cystic fibrosis at 3 years old. She lived in north metro Atlanta with her husband, Cameron, and their dog daughter, Winnie. Holly was actively involved in the Cystic Fibrosis Foundation starting when she turned 18. A former blog writer, she redirected her passion for advocating and sharing her experiences with CF into video. She ran the YouTube channel “Dreaming of Breathing” where she posted “day-in-the-life” style vlogs and informational videos related to CF. She also documented her struggles and accomplishments with CF through her Twitter (@LifeAsHolly) and Instagram (@hollyseay). When Holly was feeling healthy, she loved cooking, going to concerts, traveling, a good latte, or a glass of wine.

June 2023 — We were deeply saddened to learn of Holly’s passing. Holly was involved with the CF Foundation in many capacities. She was a loving wife, a dedicated friend, a fierce advocate of our mission, and a contributor to the CF Community Blog. She will be missed by many.

Blog Posts

Holly-Seay-Isolation-Bench-Oxygen-Featured-Rectangle

I've found it hard to cope with CF as I have gotten sicker, and loneliness comes about in both physical and emotional ways. Even though the people in my life may not know exactly what I'm going through, I'm trying to let them in on what I'm feeling.

| 6 min read