Kara Satalino

Mother of a child with CF

Kara and her husband, George, have lived in Connecticut their entire lives. Together, they have four children -- 3 boys and 1 little lady who lives with cystic fibrosis. Kara is a first grade teacher but took the year off due to the pandemic and the health concerns so many parents of children with CF face. Kara is a proud baseball, basketball, and soccer Mom and is proud to cheer embarrassingly loud for her children and the other players too! Kara has been involved with her local CF Foundation chapter since Cecelia was about a month old. She has led her Great Strides team for six years now and most recently became a Congressional Captain for her district, ready to advocate for those who live with CF each day. She looks forward to more exciting opportunities post COVID-19.

Blog Posts

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I struggled when I learned that in addition to cystic fibrosis, my daughter also had adrenal insufficiency. I felt anger, sadness, and anxiety. But thankfully, with the support of my husband, family, friends, and care team, we learned how to manage her condition and deal with emergencies.

Apr. 8, 2021 | 8 min read