Lydia Sand

Lydia Sand
Adult with CF
Lydia-Sand-Headshot

Lydia Sand has a drive for life and refuses to let cystic fibrosis hold her back. She received a master's degree in public administration in 2016 and currently works on a grant for health care workforce initiatives in Nebraska. Lydia has been a successful fundraiser for the Cystic Fibrosis Foundation since 2001. She's currently a co-chair for ROSE UP, a past member of the CF Adult Advisory Committee, and involved with other efforts in the CF community. A South Dakota native, Lydia currently resides in Omaha, where she enjoys traveling, playing in a sand volleyball league, trying new recipes, and being entertained by her dog Carl. You can follow Lydia's CF journey on Instagram.

Blog Posts

Lydia smiling with her dog, Carl, in the kitchen

Growing up with CF was hard, but my parents helped me learn how to cope by both encouraging me to fight and allowing me space to complain.

| 4 min read
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COVID-19 has introduced telehealth appointments to my cystic fibrosis care. I've learned that advocating for myself is even more important when my care team and I can't be in the same room.

| 3 min read
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Asking for help is not always easy. Asking for help when you have cystic fibrosis is even harder.

| 4 min read