Growing up with CF was hard, but my parents helped me learn how to cope by both encouraging me to fight and allowing me space to complain.
Lydia Sand has a drive for life and refuses to let cystic fibrosis hold her back. She received a master's degree in public administration in 2016 and currently works on a grant for health care workforce initiatives in Nebraska. Lydia has been a successful fundraiser for the Cystic Fibrosis Foundation since 2001. She's currently a co-chair for ROSE UP, a past member of the CF Adult Advisory Committee, and involved with other efforts in the CF community. A South Dakota native, Lydia currently resides in Omaha, where she enjoys traveling, playing in a sand volleyball league, trying new recipes, and being entertained by her dog Carl. You can follow Lydia's CF journey on Instagram.
Blog Posts
COVID-19 has introduced telehealth appointments to my cystic fibrosis care. I've learned that advocating for myself is even more important when my care team and I can't be in the same room.
Asking for help is not always easy. Asking for help when you have cystic fibrosis is even harder.