Marissa Benchea

Marissa Benchea
Adult with CF
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Marissa was diagnosed with CF at birth. She attributes being alive to her dedicated parents, incredible clinical teams, her friends, her CF tribe, and a very sassy attitude. She spends her time advocating for the CF community, being the “cool aunt,” raising her two adorable cats, eating at new restaurants, juicing, vogueing, and wearing caftans while chatting with all her friends with CF online. She moved to southern Louisiana in 2018 and is hopeful for the future of CF science and what lies ahead. You can follow her CF life on Instagram at @kissoffcf

Blog Posts

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Over the last 10 years, I've gone from only interacting with local people with cystic fibrosis to joining hundreds of people with CF around the world to help build an incredible online community. This community has helped me through hard times, and I can't wait to see what we do next.

| 5 min read