Meagan Tenyer

Meagan Tenyer
Adult with CF
Meagan-Tenyer-Headshot

Meagan was diagnosed with cystic fibrosis at 8 years old. She has been volunteering and fundraising for the Cystic Fibrosis Foundation's Great Strides event since the early 2000s, as well as for CF Cycle for Life since 2015. She spends her days working in patient education at her local hospital, and is heavily involved in her care center's CF patient advisory group. Her hobbies include traveling, photography, the beach, and spending time with her family and husband, Justin.

Blog Posts

Meagan Tenyer sitting outside her RV.

The third plenary at this year’s North American Cystic Fibrosis Conference focused on the changing needs of the CF population that are compelling an evolution in CF care. As a person with CF, this evolution in care directly affects me as I face the challenges of living longer with this disease. 

| 3 min read
Meagan standing outside of an RV.

I’ve had to make many changes in response to the COVID-19 pandemic to protect my health. Not all the changes were welcome, but now that I’ve adjusted, I’m enjoying my new normal.

| 5 min read
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Thanks to COVID-19, a work furlough forced me to slow down the pace of my life and I'm okay with that. Here's how I've let go of needing to be productive during this time.

| 5 min read
Meagan-Tenyer-Smile-Bike-Featured-rectangle

When I am sick, I find creative ways to exercise, even if it's just walking a short lap around the house to keep my strength up. I also make sure that I eat well and have a game plan for getting good food if I get sent to a hospital.

| 5 min read
Meagan-Tenyer-Wedding-Featured-Rectangle

With cystic fibrosis, it is easy to compare yourself to others and feel like your accomplishments are less impressive or significant than the people around you. Fortunately, I've found four ways that help bring me out of this mindset and set achievable, realistic, and fulfilling goals.

| 4 min read