Nicole Kohr

Nicole Kohr
Adult with CF
Nicole-Kohr-Headshot

Nicole is the writer and executive producer of Fall Risk, a new musical comedy about cystic fibrosis. She is a public relations graduate from Kean University, and certified in the theory and practice of Child Life from UCLA. She also authored a children's book called Two Cents, which is based on her experiences with critique related to CF. Nicole is proud to be an AbbVie scholarship winner and WEGO health award finalist. Nicole is an Impact Grant recipient, a patient representative for the Robert Wood Johnson Adult Cystic Fibrosis Clinic, a Regional Lung Transplant Conference patient representative, and public speaker. Nicole lives in New Jersey with her husband, mother, and twin puppies. You can follow Nicole on Twitter @cystic4real, on Instagram @sigurn1, or on Facebook. You can also email her at fallriskmusical@gmail.com.

Blog Posts

Nicole Kohr smiling and holding a stage light above her head like a spotlight

Advocacy is impactful at all ages, but the term can sound intimidating. It implies effort, time, commitment, politics, and publicity. As a 30-year-old with cystic fibrosis, I am currently an active member of the CF community, but I was not always aware of the benefits, power, and impact of advocacy.

| 6 min read
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CF Knocked the Shyness Out of Me

| 5 min read