Medical procedures -- even simple ones -- can be scary for a child. When your child has cystic fibrosis, managing the fear surrounding these necessary treatments can be daunting, but my husband and I have instituted five rules that seem to help.
Blog Posts
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4 min read
After my son was diagnosed with cystic fibrosis, I knew that I wanted to connect with other CF families. Fortunately, I've been able to find a group of moms who understand what my life is like and help me cope.
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4 min read
Figuring out your child's CF diagnosis is complicated on its own, but learning how to communicate everything that goes into caring for your child to those outside of the CF community can be even more overwhelming. Here are my tips and tricks to using your voice to both educate and advocate on behalf of your child.
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7 min read
My husband and I had always said that we would either have no kids, or we would have two. But, when our first child was diagnosed with cystic fibrosis, we were suddenly faced with a difficult decision.
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5 min read