Despite the scars and appearance-altering side effects of medications, I am proud of what my body has survived in the face of cystic fibrosis. Being a brand ambassador has lifted my spirits and led to a greater acceptance of my body, which has withstood a double-lung transplant, a feeding tube, and a port.
Rima was diagnosed with CF at 4 months old. She went to school for environmental science but now works part time for the Cystic Fibrosis Lifestyle Foundation as their development coordinator. She also volunteers her time on the CF Foundation Rocky Mountain Chapter Advisory Board as well as volunteers for Make-A-Wish Colorado. She spends her time hiking the mountains of Colorado and snowboards during the winter season. Follow her adventures on Instagram, YouTube, or on her blog.
Blog Posts
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
I had a lung transplant earlier this year and, although I'm able to do more physically than I could before my transplant, I still have cystic fibrosis. I still need support -- support from the CF community, from the CF Foundation, and from you.
Halloween, April Fools' Day, and Mother's Day may be average American holidays for most, but for me, they mark three important days in my long, emotional journey toward a new pair of lungs.
When I finally broke things off with my ex Pablo, I soon met Frank the tank. Although Frank has been great throughout my process of waiting for a double lung transplant, I think I'm ready to take a step back and breathe on my own.