Stacy Allen

Stacy Allen
Mother of a child with CF
Stacy-Allen-Headshot

Stacy is above all else a mother to two beautiful boys, Jaxson, 10, and Evan, 7. Evan was diagnosed with cystic fibrosis at 5 weeks old. Motivated by the parents who have gone before her, Stacy is passionate to do her part to propel the mission of the Cystic Fibrosis Foundation forward. Stacy is actively involved in her local CF community and serves as one of the Primary Children's Cystic Fibrosis Clinic's Quality Improvement Patient/Family Partners. She also serves on the Primary Children's Cystic Fibrosis Foundation Parent Advisory Council and is an active board member for the Utah/Idaho chapter of the Cystic Fibrosis Foundation. Nationally, Stacy serves as one of the tri-chairs for the Experience of Care Steering Committee as well as one of the patient/family members for the Liver Disease Guidelines Committee. Stacy lives in Utah with her husband and two boys, supporting her sons in their sports, activities, and piano. Follow Stacy on Instagram and Evan's journey on Instagram.

Blog Posts

Stacy Allen Evan Doctor Selfie

As Evan's mom, I have to constantly decide where to invest my time, especially when it comes to providing feedback. So, when offered the chance to turn my survey fatigue into something that would actually make a difference and be less of a hassle to do, I jumped at it.

| 5 min read
Stacy-Allen-Son-Smiles-Featured-Rectangle

The unexpected ups and downs of having a son with cystic fibrosis sometimes makes me feel like I'm on a game-show obstacle course, dodging punches and avoiding the mud pit. It helps to do my research, keep lists, rely on my support team, and take some “Mommy time” to get through life's daily challenges.

| 6 min read
Stacy-Allen-Family-Featured-Rectangle

It's easy to fall into the trap of pitying ourselves and focusing on what is going wrong in our lives. Instead, spend your time looking for all the good things that are happening too.

| 5 min read