Victoria Greene

Victoria Greene
Adult with CF
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I am a stay-at-home mother to two amazing children, one with autism. My CF journey has been a roller coaster. Although I've been sick my whole life, I was 25 when I was diagnosed. I have a rare unknown gene mutation, so my CF experience has been a unique one to say the least! I've always had a passion for writing. Even as a teenager, I had a blog about my day-to-day life. My CF blog can be found at thisraremama.wordpress.com.

Blog Posts

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It's difficult to manage cystic fibrosis self-care when you have a child with a disability. Don't pressure yourself to be like other moms. Just do the best you can. Your kids will value your efforts.

| 3 min read
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The reward for trying to look your best -- even when you are sick -- shouldn't be people questioning whether you really have a serious illness. People with cystic fibrosis and other chronic illnesses need support and kindness, not second guessing.

| 5 min read