Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
An award-winning chef shares his recipe for people with cystic fibrosis, just in time for the holidays.
November 24, 2015
Holiday Meals and Enzymes
Meet Andy Lipman
The Central Texas Chapter of the Cystic Fibrosis Foundation hosted their fourth annual Qui to the Cure fundraising event on Nov. 20 at Brazos Hall in Austin, Texas.
Paul Qui, the season nine winner of “Top Chef” and a James Beard award-winning chef, joined the chapter as they helped raise funds to fight cystic fibrosis. The event -- which raised more than $230,000 for the CF Foundation -- featured Paul's modernist, “no boundaries” approach to food and featured live entertainment, dancing and a silent auction.
Paul was kind enough to share a recipe of his own for people with CF to try at home. Arroz caldo is one of Paul's favorite cold weather foods; it's simple to make and very satisfying. It shows the influence of both China and Spain on Filipino cooking, as well as Paul's Japanese training.
We tried this recipe out for ourselves and found that it was indeed simple and satisfying! Check it out below.
Filipino broken rice porridge
Pulse the rice in a blender until broken. Strain through a colander, reserving the broken rice apart from the sifting rice flour.
Note from the editor: You can use calrose rice as a substitute for the koshihikari rice. Chopping the rice shouldn't take more than five minutes.
Simmer the rice and salt in the water until the starches come out of the rice, but the rice bits are not overcooked (stir often). This base can be made ahead and finished up to two days later.
Note from the editor: Cook on low-medium heat for 20 minutes, and make sure to stir often so that the rice doesn't stick to the bottom of the pan.
Cut the pork shoulder into cubes and season with salt. Braise the pork in about 1½ inches of water until the fat has been rendered and the pork is yielding (about two hours). Once the moisture from the pork is evaporated, the fat in the pan will begin to brown the pork. When the pork is evenly browned and crispy, add the onion, peppers and garlic. Once the moisture evaporates from these aromatics, but before the onion begins to brown, deglaze with the tamari and coconut vinegar. Reserve for the finishing of the porridge.
Note from the editor: As an alternative to braising it in the oven, consider cutting the pork into large chunks, or cubes, and then braise it by cooking on the stove top in a deep-sided pan. Look for the tamari in the international aisle of your local grocery store. This step required very little attention other than occasional stirring.
Bring the base up to a simmer and add the chicken stock, pork stock and dashi. Simmer until the porridge is loose but viscous at the same time. Season to taste. The stocks may be varied to fit your taste.
Note from the editor: You can substitute pork stock with an additional cup of the chicken stock. Cook on low-medium heat for about 20 minutes until the porridge begins to thicken.
Place about 6 ounces of the porridge into a bowl. Top with about ¼ cup of the pork mixture. Finish with sliced green onion, black vinegar, chili oil and bonito flakes to garnish.
Note from the editor: The chili oil will add a bit of spice, while the bonito flakes will give it a smoky taste. Both ingredients can be found in the international aisle of your local grocery store. If you don't like spicy foods, consider omitting the chili oil.
Former Writer/Editor, Cystic Fibrosis Foundation
Dora previously worked at the Foundation as a writer and editor. During her tenure, she loved to listen to others share their memories and experiences, and consumed storytelling in all of its different forms. She constantly looks for the uniqueness in everyone's story. Dora has a B.A. in communications from the University of Maryland, College Park, and an M.S. in public policy and administration from the London School of Economics. Born in Budapest, Hungary, Dora was raised mainly in the Washington, D.C., metropolitan area where she currently resides today.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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