Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Meet a few faces from the 2015 Pittsburgh's 50
Finest event and learn how they raised funds and awareness for the CF cause.
August 21, 2015
Stacy Motenko on Managing CF While Traveling
Anna Kampas, a Teen with CF, on Making Treatments and Therapies a Priority
Pittsburgh’s 50 Finest celebrated its 20th anniversary
with a record breaking year. On August 13, 2015, the Western Pennsylvania - Pittsburgh Chapter honored the
young professionals who collectively raised more than $400,000 for the CF
Foundation. Early on, the 50 honorees of the 2015 class -- many with no direct
connection to CF -- had committed themselves to raising at least $3,000 a piece,
but several of them raised much more.
The following 10 honorees led the
way with the highest fundraising totals:
Pittsburgh’s 50 Finest, home of the CF Foundation’s first and longest running
event, is a six month fundraising and awareness campaign that involved
learning from a care center doctor, meeting people living with CF and networking
opportunities with event alumni, mentors and fellow nominees.
further ado, please meet some of the faces of the 2015 Pittsburgh's 50 Finest
“I learned so much from this
campaign, and I give Heather a lot of credit for that.”
In June 2013, Marcus attended a kickball
tournament run by a friend who was raising money for Heather Hunter, an adult
with CF (and the 2014-15 Pittsburgh's 50 Finest keynote speaker). Marcus and
Heather became fast friends, and he was immediately inspired to take on her
cause. Marcus combined his passion and professional life of filmmaking with his
desire to make a difference. He created a short documentary of Heather's life
and daily struggles with CF. This short film earned Marcus a nomination for the
Finest campaign, and he continued to use filmmaking to raise more than $10,000.
Marcus plans to continue raising awareness for cystic fibrosis through
filmmaking and hosting other fundraising events next year.
“Getting to know the other honorees and seeing how
excited and passionate they were helped me a lot with my own
Caroline found herself volunteering at a
CF event last fall by chance. At the time, she had no direct connection to
cystic fibrosis and knew very little about the disease. That night she met a CF
mom and a dedicated volunteer who were so struck by Caroline that they were
inspired to nominate her. Initially intimidated by the idea of asking friends
and family for donations, Caroline was encouraged by her fellow honorees to take
on the challenge. In just two months time, Caroline hosted three different
fundraising events: a happy hour, a barre workout and a tailgating event that
brought in a total of $6,000. Caroline plans on staying involved with the
Pittsburgh Finest event in the future, either as a mentor or serving on the
“When they announced that we had
raised over $400,000, there was a huge roar in the room, and we were all
high-fiving, hugging and just in awe.”
For Joel, getting involved with the CF
Foundation was an easy yet personal decision because of a good friend living
with cystic fibrosis. Joel raised more than $18,000 by asking everyone he knew
from his personal and professional networks to contribute. Despite being one of
the top three honoree fundraisers, Joel believes that all 50 honorees
contributed to the event's success. Joel already has plans in place to volunteer
at several chapter and local events throughout the end of this year and
While the event on August 13th may have marked the end of the
Finest campaign for the 2015 honoree class of Pittsburgh, for most this is just
the beginning of a lifelong relationship with the Foundation. We will surely see
many of them around in the future.
Congratulations and many thanks to all
of the honorees!
Sr. Manager of Volunteer Engagement, Cystic Fibrosis Foundation
Julia joined the CF Foundation in 2011. She works on volunteer engagement initiatives including the Volunteer Leadership Conference, the teamMATEs program, and managing the new national young professionals program called Tomorrow's Leaders. She was first introduced to Foundation through a friend in college, and has been inspired by the CF community ever since.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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