Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
As I assume my new role as president and CEO of the CF Foundation, I am humbled by all that this organization has achieved and am determined to continue our work toward the ultimate goal. Here are my thoughts as I take over the reins from my dear friend and colleague.
Preston W. Campbell, III, M.D.
October 1, 2015
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Today, I am deeply honored to be taking over the reins from my dear friend and colleague, Bob Beall. For more than two decades, as president and CEO of the CF Foundation, Bob has led the search for new treatments and a cure for CF, while significantly expanding the life expectancy for people with this disease and bringing unprecedented hope to CF families everywhere. His accomplishments are too many to list, and I feel very fortunate to have had Bob as my mentor for the past 17 years.
Working alongside Bob in my role as executive vice president of medical affairs, I had the privilege of leading the Foundation's research, drug discovery and development program, among other research and clinical initiatives. I am starting this new role with a real sense of optimism because of the team that we have built here. I have never felt more confident in our community's ability to reach the finish line.
While it's impossible to say for sure what the future holds, I know two things for certain: We have gained tremendous momentum in our quest for breakthroughs in treatment and care, and we are truly making a difference in the lives of people with CF. As I assume my duties as president and CEO, I am determined to continue our commitment to translating research into new treatments, improving care at our CF care centers nationwide and increasing access to lifesaving therapies for all people with CF.
This is a tremendously exciting time to be a part of the CF story. For the first time, half of all people living with CF are adults, and the face of this disease is changing before our eyes. Adults with CF are celebrating milestones and overcoming challenges that were unimaginable just a few decades ago. For years our focus has been on adding tomorrows. Now, we are focused on adding tomorrows AND living today.
As we work to help address some of the toughest challenges that adults with CF face in their daily lives, I plan -- above all else -- to listen. We will continue to rely on the expertise of our Adult Advisory Council, which was established in 2013 to give adults with CF a greater role in helping guide and shape the work of the Foundation.
The voices of adults with CF and the broader CF community have never been stronger, and I want you to know that we hear you.
We are expanding our resources to better serve you and your families. For example, this blog -- where I am writing to you today -- is a space designed for the CF community to connect about what it means to live with this disease, and we invite all in the community to share their stories.
We are excited about these new efforts, but there is much more to do. We are also launching a new division at the Foundation specifically dedicated to community engagement to better respond to the needs and concerns of people with CF and their families. You will be hearing more in the coming months about this effort.
People with CF and their families, caregivers, researchers, donors and volunteers are at the core of the work we do. As Bob often reminds us it was a group of concerned parents who established the Foundation in 1955 and, although our organization has changed quite a bit, our commitment to the people and their families touched by this disease remains the same.
I know that I have some big shoes to fill, but I feel ready and committed to guiding this organization and the next generation of leaders as we work together to achieve our goal of a cure for all people with CF.
Preston W. Campbell, III, M.D.
President and CEO, Cystic Fibrosis Foundation
Dr. Preston Campbell is the president and chief executive officer of the Cystic Fibrosis Foundation. He previously served as the Foundation’s executive vice president for medical affairs. Dr. Campbell has more than 25 years of experience caring for people with CF. Most recently, he oversaw the Foundation’s research, drug discovery, drug development and clinical research programs, and directed clinical research, the Foundation’s network of care centers, clinical training programs and the national patient registry database. He initially became interested in cystic fibrosis as a CF camp counselor while earning his medical degree from the University of Virginia Medical School.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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