Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Meet Hal Leshner, first-time hiker in the CF
Foundation's Xtreme Hike, a fundraising event that challenges members of the CF
community, and their families and friends, to take on the great outdoors.
November 19, 2015
Meet Andy Lipman
My Inner Journey to Mental Health
The Cystic Fibrosis Foundation's Xtreme
Hike is a unique event that takes hikers through some of the most scenic
trails in the nation to raise funds and awareness for cystic fibrosis. It is all
about reaching new heights -- both physically and philanthropically.
year, 29 CF Foundation chapters hosted an Xtreme Hike. More than 800 hikers took
to the trails and raised more than $2.5 million dollars towards a cure for
We caught up with first-time hiker Hal Leshner, who
participated in the Delaware Valley Chapter's hike at Ricketts Glen
State Park in Benton, Penn. The team that Hal hiked with, Team Ilene, was the
chapter's top team, raising almost $35,000 in this third annual event.
Hal, what is your connection to cystic fibrosis?
My cousin is
one year older than I am and was born
with cystic fibrosis. Her cousin of the same age also has CF. Growing up, I
often kept my cousin company during her PT, mist and other
treatments. I remember helping her count out all of her pills before every
Why did you decide to participate in
CF Xtreme Hike?
This was the third year that my cousin with CF was
doing the hike. Her first year, she turned 30 and hiked with my uncle (her
father), who had turned 60. I was so amazed by this and how much money they
raised. The following year, her brother Lee joined them and raised even more
I thought it would be great to hike alongside my family, but I
also wanted to lose weight. I figured that if I could challenge myself
physically while raising money for CF at the same time, that's even better.
How did you incorporate your own
health into your fundraising?
Two years ago, I was sitting on the
sidelines in awe of my cousins and uncle, and I so badly wanted to be a part of
it. Prior to the hike, I challenged myself to get fit and lost 175 pounds! It's
given me a new lease on life, and I am finally healthy. This hike was a great
opportunity to further challenge myself.
My friends and family have been
extremely supportive during my weight loss journey, so I decided to tailor my
fundraising to this. I set a goal to raise $20 for every pound I lost. While I
haven't reached the $3,500 yet, I am very close.
Did you learn anything new about CF,
or the CF community, that you didn't know before?
I learned how vast
the connections to CF are. I had been connected to CF through my family, but I
met other people on the hike who had no direct connection to CF at all yet still
found the cause worthwhile to devote their time and energy to raise money for a
cure. I think that's amazing.
I am so proud that I was able to
finish the hike -- it was a great accomplishment for me -- but I have to give
credit to my cousin Ilene. She has battled CF her entire life and she is
fearless. This hike was no exception. The hike was 20 miles long, and the last
4-5 were in the rain. Yet, she still had such a positive attitude. She was
singing and so cheery … it really helped me get through the hike. To top it all
off, she left at 6 a.m. the following morning to catch a plane for a wedding. I
was nursing soreness I haven't felt in years, and she was still moving. Truly
Former Writer/Editor, Cystic Fibrosis Foundation
Dora previously worked at the Foundation as a writer and editor. During her tenure, she loved to listen to others share their memories and experiences, and consumed storytelling in all of its different forms. She constantly looks for the uniqueness in everyone's story. Dora has a B.A. in communications from the University of Maryland, College Park, and an M.S. in public policy and administration from the London School of Economics. Born in Budapest, Hungary, Dora was raised mainly in the Washington, D.C., metropolitan area where she currently resides today.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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