Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
As a real estate broker, I was already familiar with the first-time home buying process when my husband and I began our own house search. But little did I know that my CF would make me my toughest client yet.
October 11, 2016
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My husband Andrew and I got married, moved across the state of Illinois and started our new jobs in August of 2015. We love living in the same town as my cystic fibrosis care center and being closer to family. It has made life a lot easier and a lot more enjoyable. So this spring, we decided it was finally time to buy a home and start planning for our future.
Buying a home is an exciting and nerve-wracking experience for most first-time homebuyers. As a real estate broker, I luckily already knew what the process entails. I love helping clients find the perfect home that fits their lists of wishes and needs. Little did I know that I would be my toughest client yet due to my CF.
Andrew and I started our search like anyone else: We made our wish list. Although most people search for the biggest house they can afford (typically two stories for newlyweds), a master bathroom, a two-car garage and granite countertops, my CF and health was our number one priority. So, our list looked more like this:
Any buyer can make a house fit, but not all buyers can find a house with the bones they need. Making sure you look into the aspects of a home that could affect your health is the most important factor, which is why we decided to put our needs list ahead of our wish list throughout our homebuying process. It worked out for us. We found what we consider to be our forever home, and we couldn't be any happier!
Adult with CF
Cheriz lives with her husband, Andrew, near Peoria, Ill., where she is a freelance blogger and stay-at-home mom. Cheriz has taken on several volunteer positions with the CF Foundation, including serving on the Partnerships for Sustaining Daily Care Champions Committee, Community Voice, and the Adult Advisory Council. Cheriz and Andrew have a national Great Strides team and co-lead several CF events fundraising in their community. They are foster parents, and in their spare time, they work on their family blog, MoreThanDNA.org, to spread awareness and CF education.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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