Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
May 24, 2016
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In my job, I get to see first-hand how our family and corporate fundraising teams contribute to our success. Their commitment and passion remains a profound inspiration to me and my colleagues. So much so that ever since I started working at the CF Foundation, I have walked in the Bethesda, Md., Great Strides walk with the national office and helped raise money. This year, I had the pleasure of serving as the national office team leader, which made this walk extra special for me.
Since I took on this new role, I have found myself in complete awe of my co-workers. They are so passionate and generous in sharing their time, talent and money, continuously giving to the organization where they spend the majority of their time.
This generosity got me thinking about the reasons why any of us volunteer. With busy lives filled with work, family and many commitments and choices, what drives us to muster extra motivation and energy to participate in an event like Great Strides? I found, in part, my answer in a quote from Gandhi. He said, “The best way to find yourself is to lose yourself in the service of others.”
I couldn't agree more. I know that this applies to my wonderful colleagues and so accurately describes every single person working here. Our commitment to fighting CF does not stop at the end of the workday. It is our personal passion and choice. Like so many wonderful family and corporate teams from around the country, we truly walk the walk!
As an office, we raised money in many different ways. While some staffers fundraised on their own, each department hosted a passion fundraising event. From a chili cook-off to a bake-off, from a cornhole tournament to a rock concert-themed rally, we hosted an array of competitions and activities to raise money and awareness. We had a lot of fun along the way and raised a heck of lot of money for CF, too.
And we got to walk the walk on May 11. Although it rained and rained the entire day, as the start time for our walk approached, the clouds finally parted and we ended up with a packed attendance filled with love and enthusiasm. It felt good. And besides, a little rain could never dampen our spirits.
I had the distinct pleasure of delivering opening remarks alongside our fearless leader Dr. Preston Campbell and introducing Milton Koch -- father to a child with CF and a long-time and dedicated CF champion. I told the crowd of walkers, “Almost 30 years ago, when there was less hope and little money, we started Great Strides to change all of that. Now look at what we are all doing with the money raised through this inspiring event.”
Leading the national office was an awesome responsibility -- I even got to dress up as Elton John during our Great Strides kickoff event -- for which I will be forever grateful. It truly was a gift to lead this great group of colleagues and contribute even more to the CF community.
Former Senior Director of Corporate Engagement, Cystic Fibrosis Foundation
Peter lives in the heart of Washington, D.C. He is passionate about work, life, Apple products, books, history, Redskins, family, God, his two schnauzers -- George and Weezy -- and other passionate people making an everyday difference in the world. As the former senior director of corporate engagement at the Foundation, Peter worked on national corporate and donor cultivation, and with national sponsors and chapter staff. Follow @knockstead on Twitter.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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