Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
We used social media to ask you what you're thankful for this year. Check out some of your highlights!
November 23, 2016
Support Kiran on #GivingTuesday
Beware of Calls From Insurance Brokers
Contemporary wisdom tells us that gratitude is not only virtuous but healthy. Think of something you're grateful for at least once a day! Say “thank you” to someone -- it will make both of you feel good!
Now is the time of year when we're used to stopping and thinking about what we're thankful for, but as we enter the thick of this holiday season, I am striving to make the act of gratitude a daily, not just seasonal, practice.
I'm reminded daily by the online cystic fibrosis community of reasons to be grateful. What may seem a small achievement to others -- eating enough calories or getting to attend family events -- are regular sources of celebration for people living with CF. And gratitude regularly shines through as you share milestone events such as graduations, weddings, transplants, new jobs and births.
A couple weeks ago, we asked you to share with us on social media what you're grateful for right now. Below are some of your sentiments. Thank you for sharing your holiday joys AND for being a daily source of gratitude for our incredible community.
I'm thankful for my new lungs. I received the gift of life on May 31 of this year and I have never breathed better. I am so thankful that my donor family made the selfless decision to give life to someone who so desperately needed it. CF controlled my life for 27 years and now I am living life I always imagined I could!
- Lauren Lapeyrouse Guidry
I'm thankful for our handsome rainbow baby Quinn. After trying for two years, he is here. I'm thankful for newborn screening and learning about his CF early. I'm thankful that my husband just so happened to be stationed in Hawaii and being close to one of the few army CF centers. Most of all, I'm thankful for the amazing support my family has been shown and the amount of love that Quinn receives.
- Katie Koier
From Canada here. While I don't have CF, I have lost a girlfriend in the past to CF. I loved her very much, miss her very much, but will never forget her. I am thankful for the time we had together. While Canada already had their Thanksgiving in October, I wish to all those in America a wonderful Thanksgiving as well. Always remember to embrace every moment of life like it is a piece of irreplaceable treasure. <3
- Presley James Aaron Ferguson
Beyond thankful for our angel Kelsie ... diagnosed at 2 weeks, strong and healthy!! 18 months now.
- Amber D. Maret
I am thankful to have an excellent support system made up of my amazing family, girlfriend and friends. I am thankful for being able to maintain my health and having a wonderful home and an understanding job. Life is good and CF has given me the perspective to appreciate every single second of it, no matter what obstacles I may face.
- Forrest Hess
I'm thankful for the doctor who discovered that two of my kids have CF. Late diagnosis.
- Mary Wilson
Online Community Events Lead, Cystic Fibrosis Foundation
Emily is the online community events lead at the CF Foundation. She comes to the Foundation after serving for three years as digital director at the Peace Corps. Emily has worked as a digital strategist for nonprofits, agencies and political campaigns, including three years with Organizing for America. In 2006, Emily earned a master's degree in cross-cultural journalism from the Missouri School of Journalism. She loves traveling, reading, exercising, cooking and eating well.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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