Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Although my wife, Wendy, passed away eight years ago, I continue to raise funds for cystic fibrosis to keep her memory alive.
May 3, 2017
Meet Our CFF.org Homepage Heroes: The Woods Family
My Experience With Pregnancy and CF
I met my future wife, Wendy, in college. A trained concert pianist, Wendy was studying to be a music teacher. I was also a music student, though not quite as focused as Wendy. On the advice of an advisor, I joined the choir. As luck would have it, Wendy was the musical accompanist. The rest, as they say, is history, and we tied the knot in 1971.
Back then, little was known about cystic fibrosis -- and what we did know was heartbreaking. When Wendy was diagnosed at age 2, her parents were told that she wouldn't live to celebrate her third birthday. But thanks to smart decisions and a bit of luck, Wendy defied the odds and lived to be 61.
Throughout our life together, Wendy watched her diet and lived life to the fullest, accompanying me as I traveled the world as a construction company executive. Although we were living near smog-plagued Los Angeles, we were fortunate enough to relocate to Laguna Beach, Calif., to be closer to the ocean and fresh ocean air.
We frequently attended CF fundraisers, and our involvement with the CF community taught us an important lesson that continues to guide me to this day: We must fund our own drug development because many major drug companies are simply not as willing to invest in less common diseases -- even well-known ones like CF.
Raising money for CF research became our mission in life. I persuaded my company's board of directors to establish a golf tournament to benefit CF research. The tournament celebrates its 20th anniversary this year. Each year in our marketing materials, we feature a hand-drawn picture by a child with CF. I have every one of those drawings in my library today.
When we married, the predicted median survival age for someone with CF was 15; Wendy was already 24. We were the direct beneficiaries of research investments made years earlier. We wanted to continue that trend, and we kept our focus on fundraising.
Wendy passed away eight years ago, but I continue to raise funds for CF to keep her memory alive. Every year, I make a donation to the Cystic Fibrosis Foundation in Wendy's name -- and I've also decided to leave a portion of my trust to the Foundation.
The funds are earmarked for research to help people like Wendy have a better quality of life. I've seen such improvements in my lifetime, so I have hope that we will find a cure. In the meantime, I get a great deal of satisfaction knowing that I am leaving a legacy to a good cause and helping to make progress after my lifetime.
Texas Gulf Coast Chapter Board of Directors, Cystic Fibrosis Foundation
Bill is retired from WorleyParsons and its legacy companies after over 35 years, serving in numerous capacities, including roles as vice president of quality, procurement management; and director of safety, project management, business development, and materials management services. Bill has been active with the Board of Directors with the Texas Gulf Coast Chapter of the Cystic Fibrosis Foundation and more recently the Southern California Chapter -- Orange County Office. Currently he is co-chair of the 65 Roses Golf Classic held in Orange County, Calif.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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