Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
College life can be stressful when you need to fit in time for classes, treatments, and a part-time job. Now in my second year of law school, I have developed a system that can help you stay organized and balanced.
August 15, 2018
The Letter From My Donors Mom
Why I Am Thankful for 30 Years of Great Strides
Balance. Balance is the best way to describe the aspirations of a cystic fibrosis patient.
If you have CF, you understand how time can simply slip away. The never-ending breathing treatments, therapies, medications, doctor appointments, and -- every now and then -- hospitalizations, are always there. I am 23 years old, beginning my second year of law school, and would like to share how I have managed my health with a pretty hectic schedule.
When I enrolled as an undergrad at the University of Memphis, I was extremely nervous. I had never lived on my own and didn't realize how big a responsibility it was to lay out my medication daily, clean my breathing treatment nebulizers, and schedule my treatment for morning and at night. I didn't know what to do if I needed to be rushed to the hospital, or if I missed classes from being sick and whether I would be penalized. What if my roommate was bothered by my treatments?
All these thoughts relentlessly rushed through my head. Then, I remembered to calm down, take it day by day, and get organized and prepared. I have never been one to let CF hold me back, so as I always do, I set my nerves aside and jumped in headfirst.
I don't want others with CF to feel the anxiety I did, so I have listed my top 10 tips to help students with CF throughout their college career:
I truly believe without balance and organization, I would not have been able to graduate college with the resumé I wanted or be able to attend law school. As soon as you have a set schedule and adjust to your new life, you too can dive in headfirst.
Good luck to all of you incoming freshman! Buckle up, because it may be a bumpy ride. But, remember, anything is possible with the right balance and organization.
Young adult with CF
Ana is a second-year student at the Mississippi College School of Law. Ana’s passion is family law since she loves to help others through difficult times. In her free time, she enjoys wakeboarding and spending time with her puppy, Conley. Ana tries to take advantage of her CF, which has helped her gain the organizational skills to balance medications and treatments and stay dedicated to ensuring a successful future.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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