Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
We hope you will join us at the 30th Annual North American Cystic Fibrosis Conference (NACFC) in Orlando, Oct. 27-29, with pre-conference sessions on Oct. 26.
The 2016 NACFC plenary sessions will focus on the work of the CF community from drug discovery programs to clinical trials and the importance of the CF Patient Registry in research and clinical care.
The first plenary will address our commitment to bring life-changing therapies to every individual living with cystic fibrosis. Eric Sorscher, M.D., will discuss how the CF Foundation is taking advantage of new scientific advances to develop more effective therapies to treat the symptoms and complications of the disease. As a Georgia Research Alliance (GRA) Eminent Scholar and Hertz Professor in CF research, with appointments by Emory University, Children's Healthcare of Atlanta and the GRA, Sorscher will review advances in the CF Foundation Therapeutics (CFFT) pipeline as well as new potential treatments that have yet to enter clinical trials.
The second half of the session will be presented by Mitchell Drumm, Ph.D., professor of pediatrics and genetics for the Case Western Reserve University School of Medicine, where he is the director of the Research Institute for Children's Health and the inaugural recipient of the Connie and Jim Brown Professorship in CF research. Drumm will cover CF Foundation-supported drug discovery programs that specifically target nonsense mutations as well as our long-term plans to develop a one-time cure for all using the exciting new technologies of gene editing and gene therapy.
Patrick Flume, M.D., professor of medicine and pediatrics at the Medical University of South Carolina, will begin the second plenary with an update on key trials and efforts to address the large number of studies in the clinical trial pipeline. Flume will be followed by Kris De Boeck, M.D., Ph.D., who is the director of the Pediatric Pulmonary and Infectious Diseases program at the University of Leuven. De Boeck will share a global perspective on CF clinical trials and give updates from Europe and Australia.
The session will conclude with Patty Burks, R.N., M.A., CCRC, director of Clinical Trial Affairs at the CF Foundation. Burks will lead a live video panel discussion with CF community members Kristin Dunn, Brandon Erhart and Elizabeth Bishop, who will share the patient perspective on clinical trials.
The last plenary session will feature Wayne Morgan, M.D., a member of the CF Foundation's Patient Registry/Comparative Effectiveness Research Committee. He will describe the role that the CF Foundation's Patient Registry plays in research and clinical care and highlight examples of the knowledge gained from these efforts. Morgan, a professor of pediatrics and physiology, CF center director and chief of pediatric pulmonary medicine at the University of Arizona, will also discuss how the registry may be used in future research.
The poster sessions have been restructured to allow for one formal poster session for all categories and an additional session designed specifically for basic scientists. There will also be nearly eight hours of informal time to view the posters in the exhibit hall.
Thursday, Oct. 27, at 11:15 a.m.-1:45 p.m. Poster Session 1 (all numbers). All poster presenters will be at their posters ready to discuss their material.
Friday, Oct. 28, at 4:00 p.m.-6:00 p.m. Special Basic Science Poster Session. This session will be specifically for basic scientists. All poster presenters of basic science research will be present at their posters.
This year, registration for the limited attendance sessions (Brown Bags, Consultation Clinics, Junior Investigators, Roundtables) began on Sept. 7, 2016. This effort is aimed at making the limited attendance sessions more attainable for all attendees. Additionally, there will be no wait list for these sessions this year. Seats and lunches for ticket holders will only be held for 15 minutes after session start. After that time, attendees without tickets who wish to attend will be admitted on a first-come basis as space permits.
To see the complete, current list of limited attendance sessions per day, click
The 2016 NACFC will debut an alternative learning environment for attendees to view sessions that are being live-streamed. The "Live Lounge" will have a modern, casual atmosphere where attendees can recharge mobile devices while experiencing live-streaming sessions. Attendees viewing sessions via the Live Lounge can claim continuing medical education (CME) credits for these sessions. Sessions that are being live-streamed are marked with an asterisk on the
We have a wide variety of Short Courses and Special Classes being offered on Wednesday, Oct. 26. Click
here for course descriptions.
Still need to register for the conference? Want to add a Short Course or Special Class to your registration? Click
here to register now.
If you haven't made your housing reservations yet, do so right away! Space is filling up quickly. Be sure to book through the official NACFC housing provider. Click
here to reserve your housing today.
Mobile apps are growing steadily in popularity and our award-winning app is no exception. The download rate of the NACFC mobile app has increased by nearly 614 percent since its inception in 2011. Don't miss out on the convenience, fun and efficiency that the 2016 NACFC mobile app has to offer. Emails will be sent shortly announcing the availability of the app, which provides the following features:
Live Q&A: Session leaders will have the ability to take questions from the audience through the app in real time! If you don't have the app downloaded, you will miss out on the opportunity to get your question answered live.
Audience Participation via Polling: Again in 2016, attendees will be able to participate in certain sessions that use polling to engage the audience. Many session leaders are taking advantage of the polling feature this year, so be sure to download the app so that you are ready to participate.
Session leaders and speakers who want to use these features for their sessions can email
here for more information.
You may notice a few new titles this year in the program. The Caregivers Sessions by Discipline have been renamed and are now called Discipline Group Sessions. We have also revamped the titles for our session leaders to make them more consistent across the board. Most notably, faculty who are leading sessions are all called chairs, with the exception of the faculty leading Plenaries, Short Courses and Special Classes, all of whom are now called leaders. In addition, Roundtable moderators are now called Roundtable facilitators. Same great leadership, just new titles!
Have questions? Email
Receive a discount of up to 10 percent on your airfare for attending the 2016 NACFC when you book flights directly through Delta or United. This discount is available to all NACFC travelers whose airfare is NOT being covered by the Cystic Fibrosis Foundation. Those individuals who have been instructed to book through MacNair Travel should NOT book directly through the airlines nor use this discount code. Click
here for more information.
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