Since 2015, 157 cystic fibrosis programs have deployed the CF Patient
and Family Experience of Care (PFEC) survey, resulting in what is now a total
of more than 10,000 completed surveys. People are asked twice a year to provide
feedback on their experience from their care center visit. This feedback helps their
care teams improve the quality and safety of the CF care being provided.
We should celebrate this
milestone and the efforts of the many people who helped build this incredible
resource that is being used to improve CF care. We would also like to thank the
more than 7,000 people who completed the PFEC survey at least once, the almost
2,000 people who completed the survey more than once, and the 621 people who completed
the survey three or more times! Continually giving feedback to their CF care
teams fuels continuous quality improvement in CF care.
We would also like to
thank the many directors and coordinators at the CF centers who allocated time
to implement the PFEC survey and to update the information needed to invite
people to complete it. We appreciate your commitment to understanding the
experience of care from the perspective of your patients and their families.
Another thank you goes out
to all the quality improvement teams improving CF care. Several PFEC measures
have shown improvement over time, and we are continually learning what teams
are doing to improve care. This includes everything from putting mask dispensers
at the entrance of the clinic building to asking about mental health. Thank you
for listening to patients and family members’ concerns -- along with their many
compliments -- about care received from their team.
You can order posters or
flyers to help remind your patients and families about the Experience of Care
Survey by emailing resources@cff.org.
If you have questions about
deploying the PFEC survey or have questions about your results, please contact
Karen Homa at homakaren@gmail.com.