What You Need To Know

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CF Foundation Launches Strategic Plan

The CF Foundation is pleased to announce the launch of its strategic plan, which establishes key priorities for next five years as we advance our Path to a Cure, meet emerging challenges in care, and explore new ways to partner with and support the CF community.

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  1. Article

    Sustaining Mental Health Care: Seeking Several Funding Streams

    The care team at Children’s Healthcare of Atlanta and Emory University used a value-based argument to gain support from administration to explore long-term institutional funding for mental health care while drawing on philanthropic funding.

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  2. Article

    Patient and Family Partners Use QI Methods to Increase Program-Level Co-Production

    Through distributed leadership, quality improvement science, and timely data capture, the Cystic Fibrosis Learning Network makes it easier for clinicians and people living with CF to collaborate to improve care.

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  3. Article

    UNMC Team Decreases Need for Crisis Lung Transplant Evaluations

    Implementing advanced care planning has helped the adult care team at the University of Nebraska Medical Center reduce lung transplant evaluations resulting from health crises.

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  1. Article

    CF Foundation Working to Ensure Trikafta Coverage and Providing Tools for Clinicians

    An update on Trikafta™ coverage and new tools for clinicians to use in correspondence with payers.

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  2. Article

    View a Recent Webinar to Catch Up on Research Progress

    A recording of the recent webinar, Research Progress: The Community’s Voice in Action, is now available to view online.

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  3. Article

    Join Us on April 16 for ResearchCon 2020: CFTR Science and Genetic-Based Therapies

    In partnership with researchers, clinicians, and community members, the Cystic Fibrosis Foundation will host the second annual ResearchCon for anyone with a personal or professional connection to CF.

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  4. Article

    Help Ensure We Hear From Underrepresented Populations

    Patients and families are partnering with researchers and clinicians to advance CF care and research. In 2020, new projects will require insights from underrepresented populations in the CF community.

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