What You Need To Know

Blog Post

More Than Taking Medications

Successfully managing a chronic disease like cystic fibrosis means more than just taking medications. It requires trusting partnerships between people with CF and their families with their CF care teams to develop treatment plans that line up personal life goals with health goals.

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  1. Explainer

    The Partnerships for Sustaining Daily Care Initiative

    The Cystic Fibrosis Foundation made a strategic commitment to develop a multi-pronged approach to help people with cystic fibrosis stick with their treatment plans called Partnerships for Sustaining Daily Care (PSDC). Learn more about this initiative and how you can get involved.

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  2. Article

    Success With Therapies Research Consortium

    The Success with Therapies Research Consortium facilitates the clinical study of interventions to improve day-to-day adherence and cystic fibrosis disease self-management to optimize health outcomes and quality of life.

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  3. Blog Post

    5 Things We Heard About Partnering in CF Care

    The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here’s what we heard.

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  1. Blog Post

    NACFC Session Examines the Importance of Partnerships in CF Care

    At the third plenary at this year’s North American Cystic Fibrosis Conference, we explored what it means to partner in care and how to do it better.

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  2. Blog Post

    Why Little Moments Matter When It Comes to CF Care

    When it comes to my cystic fibrosis care team, I’ve learned that it’s often the little moments that matter most.

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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

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