Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Published on October 9, 2015
More than 4,000 scientists, clinicians and caregivers have gathered at the 29th annual North American Cystic Fibrosis Conference in Phoenix to share breakthroughs in CF care, research and drug development. At the opening session on Thursday, the Cystic Fibrosis Foundation introduced its new leadership, unveiled a new research award and shed light on how CF is moving to the forefront of the emerging field of personalized medicine.
Robert J. Beall, Ph.D., who stepped down as the CF Foundation's CEO and president on Oct. 1, welcomed conference attendees and the online audience. The advances the CF scientific and medical community is making, said Beall, “translate into meaningful improvements in the health and day-to-day lives of people with CF, and offer hope and inspiration to all of us.”
To further illustrate the impact of scientific advances, Beall shared a video of adults with CF describing how progress in CF research has made a difference in their lives. Watch the video below.
The CF Foundation's new leader, Preston W. Campbell III, M.D., praised the group's hard work, commitment and collaboration, which among many other achievements have led to the approval of two drugs targeting the underlying cause of CF.
Emphasizing that, while many challenges remain before the CF community reaches its goal of a cure for all people living with the disease, Campbell told the audience: “We have a vision, we know where we are going and each of you plays an important role in making sure we get there.”
Campbell played a video tribute featuring members of the CF community who described Beall's impact on them and the search for a cure over nearly four decades. Watch the video tribute to Robert J. Beall, Ph.D. below.
Campbell also introduced the Robert J. Beall Therapeutic Development Award to recognize members of the CF research community whose work embodies and carries on Beall's innovative spirit in driving advances in CF research.
The first recipients of the award include Alan Verkman, M.D., Ph.D., professor of medicine and physiology at the University of California, San Francisco, School of Medicine, and Luis Galietta, Ph.D., a professor of molecular genetics at the University of Genoa, Italy, who were honored for their pioneering work to adapt high-throughput screening methods to find compounds that could target the root cause of cystic fibrosis.
Research teams at Aurora Biosciences and Vertex Pharmaceuticals Inc. were also recognized for their significant contributions to bringing the first treatments that address the basic defect in CF into the hands of many of those living with the disease.
The plenary's featured speaker, John P. Clancy, M.D., professor and director of CF Clinical and Translational Research at Cincinnati Children's Hospital Medical Center, closed the session with an overview of advances in personalized medicine that could transform CF care and treatments. With the development of drugs that treat the underlying cause of CF, researchers are focusing on ways that treatments can be even more specifically and effectively tailored to benefit the individual living with CF. Read more about Dr. Clancy's talk on our CF Community Blog.
Register online today to watch additional live-streamed presentations from this year's conference.
An archived version of the plenary will also be available on the Foundation's website in the coming week.
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