What You Need To Know

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Priorities for the CF Community in Health Care Reform

People with cystic fibrosis have complex health care needs that require specialized care. Adequate, affordable health insurance is vital to ensure access to necessary treatments -- and potential changes to our health care system need to address the needs of the CF community.

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  1. Article

    Milestones in Health Care Reform

    As health care reform is a top priority for the current administration and 115th Congress, the Cystic Fibrosis Foundation is engaging policymakers to advocate for access to high-quality, specialized CF care and adequate, affordable health insurance regardless of income, employment, health, status, or geographic location.

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  2. Protecting Access to Medicaid for Adults With CF

    Medicaid plays an important role in helping one-third of adults with cystic fibrosis in the U.S. afford the specialized care and treatments they need to stay healthy.

     

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  3. Article

    How Tax Reform Could Impact People With CF

    Congress is currently considering how to reform the U.S. tax code and several proposed changes could directly impact the cystic fibrosis community.

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  1. Blog Post

    The Senate Heard Our Voice: The Role of Advocacy in CF

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

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  2. Blog Post

    Father Worries That Proposed Health Care Reforms Could Affect Daughters With CF

    As a parent of two young adults with cystic fibrosis, Peter knows the financial challenges and obstacles people with the disease face when trying to access quality, affordable care.

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  3. Blog Post

    9-Year-Old With CF Needs Health Care Protections, Says Mother

    A mother worries that her son may lose access to crucial cystic fibrosis medication if proposed health care reforms are carried out.

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  4. Blog Post

    Social Worker Sees Health Reform's Impact in CF Work

    According to social worker Kim Reno, removing critical health care protections in current law would be devastating for people with cystic fibrosis and their families.

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  5. Article

    The Preserving Employee Wellness Programs Act

    Legislation currently under consideration by U.S. Congress would allow employers and insurers to request genetic information, including genetic tests and medical histories, from their employees and their families as part of employer-based wellness programs.

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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.

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