What You Need To Know

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Our Policy Agenda

The Cystic Fibrosis Foundation urges federal and state elected officials to create and maintain policies that support our efforts to add tomorrows to the lives of people with cystic fibrosis.

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    Advocacy Achievements

    See the CF Foundation advocacy achievements accomplished through working diligently with state and federal government officials to shape public policy that helps people with CF live full, productive lives.

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    Policy Principles

    Our work to help ensure that people with cystic fibrosis have access to high-quality, specialized care is guided by five core principles.

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    Briefings, Testimonies, and Regulatory Comments

    By educating elected officials and other government decision makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, productive lives.

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    Congressional Cystic Fibrosis Caucus

    The Congressional Cystic Fibrosis Caucus, comprised of members of the House and Senate, works to improve quality of life for people with cystic fibrosis. The Caucus includes over 160 bipartisan members who raise awareness of cystic fibrosis; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable cystic fibrosis care.

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    Advocacy News

    Read the latest on the Cystic Fibrosis Foundation’s fight for policies that work toward a cure for CF and help ensure everyone with the disease can get adequate, affordable care.

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    The Senate Heard Our Voice: The Role of Advocacy in CF

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

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    U.S. Senate Cystic Fibrosis Caucus Adds Momentum to the Fight

    Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”

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    Watch: 10 Years of Volunteer Accomplishments

    Thanks to the amazing efforts of advocates within the CF community, we have helped pass three crucial pieces of legislation into law in four years!

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    Our Day on the Hill

    More than 60 teens from across the country traveled to Washington, D.C., to advocate on behalf of their siblings, friends and relatives with CF as part of Teen Advocacy Day.

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Find Events Near You

With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.

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