Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Learn more about previous CF Foundation community conferences.
On Apr. 15 and 17, 2021, the Cystic Fibrosis Foundation hosted ResearchCon, a virtual event dedicated to CF science and research. More than 80 researchers, clinicians, and community members gave live presentations and answered questions on understanding a wide variety of topics.
2021 CF MiniCon: Transplant
CF MiniCon: Transplant provided people with cystic fibrosis, their family members, and caregivers an opportunity to learn about advanced lung disease and explore all stages of the transplant process.
2021 CF MiniCon: Transplant
The fifth annual BreatheCon was a two-day event for adults with cystic fibrosis, held on Sept. 25-26, 2020, that provided a virtual space to share, connect, and learn while supporting one another.
CF FamilyCon 2020
The third annual CF FamilyCon was a two-day event held on June 18 and 20, 2020, that provided adults with cystic fibrosis, their families, and friends a space to connect, share, and learn from each other.
The second ResearchCon was a virtual event dedicated to cystic fibrosis science and research for anyone with a personal or professional connection to CF.
2019 CF MiniCon: Transplant
CF MiniCon: Transplant provided people with cystic fibrosis, their family members, and caregivers an opportunity to explore all stages of the transplant process.
The fourth annual BreatheCon was a two-day event for adults with cystic fibrosis, held on Sept. 20-21, 2019, that provided a virtual space to connect, share, participate in fun activities, and learn from others with CF.
CF FamilyCon 2019
On June 9, 2019, the second annual CF FamilyCon provided adults with cystic fibrosis and their families a space to connect, share, and learn from each other.
The first ResearchCon was a virtual event dedicated to cystic fibrosis science and research around infections, a top priority for the CF community.
CF MiniCon: CF Adults Connect
This virtual event for adults with cystic fibrosis, held on November 7, 2018, provided a casual space for adults with CF to connect, have fun, and get to know each other beyond cystic fibrosis.
The third annual BreatheCon was a two-day event for adults with cystic fibrosis, held on Sept. 28-29, 2018, that provided a virtual space to connect, share, participate in fun activities, and learn from others with CF.
2018 CF MiniCon: Transplant
This virtual event for adults with cystic fibrosis, held on Aug. 15, 2018, provided an opportunity to explore all stages of the transplant process from considering a transplant, preparing for transplant, or post-transplant.
CF FamilyCon 2018
The first ever CF FamilyCon, held on June 3, 2018, invited people with cystic fibrosis and their families to connect, share, and learn from each other.
CF MiniCon: Sexual and Reproductive Health
This virtual event for adults with cystic fibrosis, held on April 8, 2018, provided an opportunity to discuss the impact of CF on sexual health, the decision to have kids, the parenting journey, and beyond.
CF MiniCon: Self-Care and Relationships
This virtual event for adults with cystic fibrosis and their families, held on Feb. 27, 2018, covered advocating for your or your loved one's care and maintaining relationships with care teams, your support systems, and yourself.
BreatheCon 2017 featured keynote panels, fun activities, group chats, and small group video breakouts on issues that are unique to adults living with CF.
CF MiniCon: Young Adult
CF MiniCon: Young Adult was a virtual event held on July 22, 2017 for young adults with cystic fibrosis who want to connect and share experiences about transitioning to adulthood while they face new challenges, make life changes, and become more independent.
2017 CF MiniCon: Transplant
Held on May 21, 2017, CF MiniCon: Transplant offered a virtual space for adults with CF to connect and share experiences about every step of the transplant process.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
Sign up for our emails