Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
8445 Keystone Crossing Suite #135
The Indiana Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Ft. Wayne 2019 Great Strides
9:30 AM, May 4, 2019
Fort Wayne Tincaps, Parkview Field
Evansville 2019 Great Strides
9:30 AM, May 11, 2019
Wesselman Park North and South Shelter
Greenfield 2019 Great Strides
9:30 AM, May 18, 2019
Lafayette 2019 Great Strides
9:30 AM, June 1, 2019
Indianapolis 2019 Great Strides
1:00 PM, June 9, 2019
Fort Harrison State Park (Reddick Shelter)
Mishawaka 2019 Great Strides
9:30 AM, June 22, 2019
65 Roses Golf Classic
8:00 AM, July 29, 2019
Sagamore Golf Club
Join us on July 29th at the Sagamore Golf Club in Noblesville for the 32nd Annual 65 Roses Golf Classic. Registration and breakfast will start at 8AM with a 9AM shotgun start. While golfing, players enjoy complimentary beverages, restaurants tastings, and other fun activities on the holes.
Indianapolis CF Cycle for Life 2019
8:30 AM, August 24, 2019
Get your wheels in motion and join us for our 7th annual bicycle event as we ride through some of the most picturesque and scenic terrain in Fortville, IN. CF Cycle for Life is a fully-supported ride with different route options.
Vincennes 2019 Great Strides
12:30 PM, September 15, 2019
Purple Tie Ball
6:00 PM, October 5, 2019
Crowne Plaza at Historic Union Station
The third annual Purple Tie Ball is a high-end fundraising competition honoring Indiana's finest professionals who have committed to raising CF awareness and fundraise towards a cure. Guests will enjoy a gourmet 6-course meal, each course paired with a unique craft brewery local to Indiana, dinner wine and cocktails.
4:00 PM, October 26, 2019
Beer lovers, cocktail connoisseurs, and foodies unite at this annual concoction of beer tasting and wine sipping! Enjoy numerous tasting stations, including a slew of cocktails from local distilleries, craft beers, wines, food from various local restaurants, an over-the-top silent auction, and two live bands.
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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