Caring for a Child With CF

Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.

What You Need To Know

Blog Post

CF Infant Care

The Cystic Fibrosis Foundation offers a number of resources to help you understand this disease and find the best care for your child.

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  1. Explainer

    Parent and Guardian Guidance

    Learning that your child has cystic fibrosis can be overwhelming. We are here to help provide you with resources that keep you informed.

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  2. Topic

    Working With Your Child's School

    Find the tools and resources you need to help your child achieve academic success while maintaining his or her health.

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  3. Blog Post

    5 Questions for Parents of CF Teens

    As parents of kids with CF, we can make a life-transforming difference by focusing as much on their mental health as we do on their physical health. If you think your child’s CF is taking an emotional toll, asking yourself these questions may help.

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  1. Blog Post

    Why I’m Grateful for My Parents' Approach to My CF

    Growing up with cystic fibrosis, my parents always encouraged me to take responsibility and be open and honest about my disease. That’s why my number one piece of advice for parents of kids with CF is to entrust your child with small bits of responsibility at an early age so that they can take care of themselves down the road.

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  2. Blog Post

    5 Ways I Help My Daughter Sustain Her Daily CF Care

    When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.

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FIND A SOLUTION

Insurance, financial, legal, and other issues. A dedicated, knowledgeable CF Foundation Compass case manager is ready to work with you one-on-one.

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