Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
MRSA stands for methicillin-resistant Staphylococcus aureus. The bacteria can cause an infection on the skin and in the lungs. It is resistant to several common antibiotics. But MRSA can be treated with some antibiotics, nose drops and other therapies.
MRSA may worsen lung disease. A 2010 study, published in the Journal of the American Medical Association (JAMA), looked at MRSA lung infections in people with cystic fibrosis. The study researchers found that having MRSA in your lungs for longer than two years might affect survival. However, there is much more to learn about MRSA. This includes how it affects people with CF and the best treatments for MRSA lung infections.
Watch the webcast below featuring Edith T. Zemanick, M.D., M.S.C.S, to learn more about MRSA and CF as she explains:
MRSA can spread from one person to another through casual contact or through contact with objects that have become covered with the bacteria.
If MRSA is in the lungs, it can be spread in tiny drops of liquid when a person coughs, sneezes or laughs. It can also be spread from objects that touch the mouth.
If MRSA is on the skin, it can be spread through skin-to-skin contact with others, such as athletes playing football or wrestling.
The best way to protect yourself or your child from MRSA is to use basic infection prevention and control practices, including the following.
Your CF care team can tell you if you or your child has MRSA in the lungs. MRSA may be one of the germs that the laboratory can detect by testing the sputum culture in a specific way. Ask your CF care team about the results of your last throat or sputum culture.
Most skin infections are boils and abscesses that are not serious. However, more serious infections do occur and these may be caused by MRSA. If you have a skin infection that is not healing, see your regular doctor as soon as you can.
If you or your child has MRSA, talk to your CF care team about whether or not you should notify your workplace or school.
Download the CF Foundation's latest Patient Registry to see how many people with CF have MRSA (page 16).
Among the bacteria that cause lung infection in people with CF, MRSA is becoming more common in people with CF. It is now found in about 25 percent of people with the disease. MRSA is resistant to multiple antibiotics, and lung infections caused by the bacteria often become a long-term condition.
To address this serious problem, the CF Foundation has tracked the number of people with CF who were infected with MRSA for a number of years. The CF Foundation has also tightened its infection control guidelines to limit the spread of these bacteria.
The Foundation supports clinical research to evaluate new therapies that could target MRSA. This work includes studies of a new inhaled antibiotic to treat people with CF who have long-term MRSA infection.
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