What You Need To Know

Blog Post

Deciding When to Get Listed

There are many things that you can do while waiting for donor lungs to become available. Preparing for a lung transplant includes maintaining your health, performing your routine cystic fibrosis care, and being ready to respond when donor lungs are available.

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  1. Article

    Maintaining Your Health While Waiting

    You may be waiting for a transplant for a long time. While you're waiting, there are some things you will have to do in addition to your normal routine, to ensure you remain healthy and eligible for transplant.

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  2. Blog Post

    My Experience Waiting and Getting the Transplant Call

    I made it onto the transplant list after first being rejected. After 18 months of waiting, I got the call that my new lungs were waiting for me.

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  3. Blog Post

    2 Dry Runs and a Transplant: My Journey Toward New Lungs

    Halloween, April Fools’ Day, and Mother’s Day may be average American holidays for most, but for me, they mark three important days in my long, emotional journey toward a new pair of lungs.

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  1. Blog Post

    The Journey to My First "Lung-iversary"

    Because of the gift of one selfless donor, I am celebrating my first year with my new lungs. Even though I spent more than two and a half years on the double-lung transplant list and had a rough year after transplant, breathing easy has made it all worth it.

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  2. Blog Post

    Trying to Weather the Emotional Storm of Physical Breakdown

    My life after a 2011 lung transplant was going along smoothly -- until chronic rejection and the wait for new lungs while hospitalized took me to my physical and emotional limits.

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  3. Blog Post

    That Time We Went Viral and Where We Actually Are Today

    You may or may not have seen the video of the woman taking her first breath as her breathing tube is removed following her lung transplant. That was my fiancée, Jennifer.

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