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  • What Is CF?
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    ABOUT CYSTIC FIBROSIS

    Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.

    Role of Genetics in CF

    CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.

    CF Genetics: The Basics
    CF Mutations Video Series
    Find Out More About Your Mutations
    Personalized Medicine
    Types of CFTR Mutations

    DIAGNOSIS

    If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.

    TESTING FOR CYSTIC FIBROSIS

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.

    Carrier Testing for Cystic Fibrosis
    CFTR-Related Metabolic Syndrome (CRMS)
    How Babies Are Screened in IRT-Only vs. IRT-DNA States
    Newborn Screening for CF
    Sweat Test
  • Life With CF
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    Caring for a Child With CF

    Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.

    CF Infant Care
    PARENT AND GUARDIAN GUIDANCE

    Working With Your Child's School

    Individualized Education Programs (IEPs) and 504 Plans
    School Transitions for People With CF and Their Families
    When There's More Than One Person With CF in the Same School

    Daily Life

    Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.

    Adult Guide to Cystic Fibrosis

    CF and School

    For Teachers
    Managing My CF in College
    CYSTIC FIBROSIS-RELATED DIABETES

    Emotional Wellness

    Anxiety and CF
    Coping While Caring for Someone With Cystic Fibrosis
    Depression and CF
    Substance Misuse
    Working With Your Care Team

    Fitness and Nutrition

    Fitness
    Nutrition and Your Digestive System

    Germs and Staying Healthy

    How Can You Avoid Germs?
    What Are Germs?

    Traveling With CF

    Preparing to Travel
    In Transit and at the Destination
    Special Considerations While Traveling Abroad

    Transitions

    People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.

    Managing My CF in College

    Accommodations for College
    Scholarships and Financial Aid

    Reproductive Health and Fertility

    Contraception and Protection
    How Does CF Affect the Female Reproductive System?
    How Does CF Affect the Male Reproductive System?
    Sex and CF: Some Practical Advice

    Family Planning and Parenting With CF

    Making Your Family Planning Decisions
    Pregnancy and CF
    Alternative Ways to Build a Family
    Parenting as an Adult With CF

    Colorectal Cancer and CF

    About Colorectal Cancer
    Preparing for a Colonoscopy When You Have CF
    What Happens After My Colonoscopy?

    Treatments and Therapies

    People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.

    Airway Clearance

    Active Cycle of Breathing Technique
    Airway Clearance Techniques
    Autogenic Drainage
    Basics of Lung Care
    Chest Physical Therapy
    Coughing and Huffing
    High-Frequency Chest Wall Oscillation
    Positive Expiratory Pressure

    Clinical Trials

    Clinical Trials 101
    What to Consider When Joining a Clinical Trial
    After the Clinical Trial: What’s Next?

    Lung Transplantation

    Getting on the List
    Surgery, Recovery, and Life Post-Transplant
    Waiting for the Transplant
    What Is a Lung Transplant?
    What to Consider Regarding a Lung Transplant

    Medications

    Antibiotics
    Bronchodilators
    CFTR Modulator Therapies
    Mucus Thinners
    Nebulizer Care at Home
    Vascular Access Devices PICCs and Ports

    Partnerships for Sustaining Daily Care

    More Than Taking Medications
    The Partnerships for Sustaining Daily Care Initiative

    Treatment Plan

    CF Care Center Visits
    Managing Your Treatment Plan
    Partnering With Your Care Team
  • Care
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    Care Centers

    Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.

    CF CARE CENTER finder

    We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.

    Clinical Care Guidelines

    The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.

    Age-specific Care Guidelines

    Adult Care Clinical Care Guidelines
    Infant Care Clinical Care Guidelines
    Management of CRMS in First 2 Years and Beyond Clinical Care Guidelines
    Preschool-Aged Care Clinical Care Guidelines
    CFTR Modulator Therapy Care Guidelines

    Diagnosis Care Guidelines

    CF Diagnosis Clinical Care Guidelines
    Newborn Screening Clinical Care Guidelines
    Sweat Test Clinical Care Guidelines

    Infection Prevention and Control Care Guidelines

    Allergic Bronchopulmonary Aspergillosis Clinical Care Guidelines
    Eradication of Initial P aeruginosa Clinical Care Guidelines
    Infection Prevention and Control Clinical Care Guidelines
    Nontuberculous Mycobacteria Clinical Care Guidelines

    Nutrition and GI Care Guidelines

    Antioxidants Clinical Care Guidelines
    Colorectal Cancer Screening Clinical Care Guidelines
    Enteral Tube Feeding Clinical Care Guidelines
    Nutrition in Children and Adults Clinical Care Guidelines
    Nutrition in Pediatrics Clinical Care Guidelines
    Pancreatic Enzymes Clinical Care Guidelines
    Vitamin D Deficiency Clinical Care Guidelines

    Other CF-related Conditions Care Guidelines

    Bone Disease in CF Clinical Care Guidelines
    Cystic Fibrosis-Related Diabetes Clinical Care Guidelines
    Liver Disease Clinical Care Guidelines

    Respiratory Care Guidelines

    CF Airway Clearance Therapies Clinical Care Guidelines
    Chronic Medications to Maintain Lung Health Clinical Care Guidelines
    Lung Transplants Clinical Care Guidelines
    Pneumothorax and Hemoptysis Clinical Care Guidelines
    Pulmonary Exacerbations Clinical Care Guidelines
    SCREENING & TREATING DEPRESSION & ANXIETY GUIDELINES

    Clinician Resources

    As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.

    Clinician Awards

    Clinician Career Development Awards
    Clinician Training Awards
    Mutation Analysis Program

    Network News

    Network News: January 2019
    Network News: NACFC 2018
    Network News: June 2018
    Network News: March 2018
    Network News: Previous Issues

    Partnerships for Sustaining Daily Care

    As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.

    MORE THAN TAKING MEDICATIONS
    The Partnerships for Sustaining Daily Care Initiative
    Success With Therapies Research Consortium

    Your CF Care Team

    Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.

  • Assistance Services
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    Compass

    Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.

    Disaster and Emergency Preparedness Plan

    INSURANCE

    For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.

    MEDICAID

    Medicaid and CF: An Overview
    Medicaid Eligibility Requirements
    Dual Eligibility

    MEDICARE

    Medicare and CF: An Overview
    Medicare Eligibility and Enrollment
    Dual Eligibility

    YOUR INSURANCE PLAN

    The Insurance Basics
    Find Resources: CF Foundation Compass
    Understanding and Choosing Coverage
    Health Insurance Coverage and Open Enrollment Periods
    Claims and Appeals
    Glossary of Common Health Insurance Terms
    Understanding Travel Insurance
  • Research
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    About Our Research

    The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.

    Research We Fund
    RESEARCH OVERVIEW
    RESEARCH MILESTONES
    Track Record of Progress
    New Developments in Clinical Research
    Cystic Fibrosis Foundation Therapeutics Lab

    Developing New Treatments

    The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.

    CFTR Modulator Types

    Clinical Trials

    Clinical Trials 101
    What to Consider When Joining a Clinical Trial
    After the Clinical Trial: What’s Next?
    CLINICAL TRIAL FINDER
    DRUG DEVELOPMENT PIPELINE

    Drug Development Pipeline 101

    About the Drug Development Pipeline
    How Drugs Get on the Pipeline
    Trailblazer CF Clinical Trials Campaign

    Research Into the Disease

    Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.

    Research Into CF Complications

    Gastrointestinal Issues and Cystic Fibrosis-Related Diabetes
    Infections
    Inflammation
    Mucus

    Restore CFTR Function

    Basics of the CFTR Protein
    CFTR Modulator Types
    Gene Therapy for Cystic Fibrosis
    Gene Editing for Cystic Fibrosis
    Gene Delivery for Cystic Fibrosis Therapy
    Stem Cells for Cystic Fibrosis Therapy

    Role of Genetics in CF

    CF Genetics The Basics
    CF Mutations Video Series
    Find Out More About Your Mutations
    Personalized Medicine
    Types of CFTR Mutations

    Researcher Resources

    Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.

    Awards and Grants

    Career Development Awards
    Research Awards
    Training Awards
    CF BASIC RESEARCH CENTERS
    Cystic Fibrosis Foundation Research Conference

    North American CF Conference

    2018 NACFC
    Carolyn and C. Richard Mattingly Leadership in Mental Health Care Award
    Mary M. Kontos Award
    Paul di Sant’Agnese Distinguished Scientific Achievement Award
    Quality Care Awards
    Richard C. Talamo Distinguished Clinical Achievement Award
    Robert J. Beall Therapeutics Development Award

    Patient Registry

    Care Center Data
    Understanding Changes in Life Expectancy

    Research Consortia

    CF Biomarker Consortium
    CFTR 3-D Structure Consortium
    CFTR Folding Consortium
    Epithelial Stem Cell Consortium
    Mucociliary Clearance Consortium
    SUCCESS WITH THERAPIES RESEARCH CONSORTIUM

    Therapeutics Development Network

    TDN Coordinating Center Study Services
    Working With the TDN

    Tools and Resources

    Antimicrobial Tools and Resources
    Bioinformatics Tools for CF
    CFTR Antibodies Distribution Program
    CFTR Assays
    CF Foundation Biorepository
    CFTR Chemical Compound Program
    CFTR Protein Domains
    Patient Registry Data Requests
  • Get Involved
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    Advocate

    Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.

    ADVOCATE WITH US

    Asking Questions of Candidates to Inform Your Decisions
    Current Advocacy Actions
    Sign Up for Advocacy Action Alerts
    CURRENT ADVOCACY ACTIONS

    Health Care Reform

    Priorities for the CF Community in Health Care Reform
    Milestones in Health Care Reform
    Protecting Access to Medicaid for Adults With CF
    How Tax Reform Could Impact People With CF
    The Preserving Employee Wellness Programs Act

    Our Advocacy Work

    Advocacy Achievements
    Advocacy News
    Briefings, Testimonies, and Regulatory Comments
    Congressional Cystic Fibrosis Caucus
    Our Policy Agenda
    Policy Principles
    SIGN UP FOR ADVOCACY ACTION ALERTS

    Community

    We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.

    CF Peer Connect
    Community Voice
    Help Shape CF Research
    IMPACT GRANTS
    Virtual Events

    Donate

    Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.

    ANNUAL FUND

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    Workplace Engagement
    DONATE YOUR PROPERTY

    eCards for a Cure

    About the Artists
    Send an eCard
    Submit Your Artwork

    Honor a Loved One

    Create a Tribute Page
    Find a Tribute Page
    Give an Honor/Memorial Gift
    Manage a Tribute Page
    MAKE A DONATION
    MAKE A MAJOR OR LEGACY GIFT

    Sponsor a Participant

    CF Climb
    CF Cycle for Life
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    Xtreme Hike

    Participate

    In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.

    DONATE YOUR TIME
    FIND A CLINICAL TRIAL
    FIND A LOCAL CHAPTER
    Great Strides

    Participate in an Event

    Conference Livestreams
    Fundraising Events
    Virtual Events
    RAISE CF AWARENESS
    Tomorrow’s Leaders
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  1. Cisco Ranks as Top Great Strides National Corporate Team

    February 12, 2019

    Jedd Williams of Cisco Systems Inc. has raised more than $1,000,000 to support the mission of the Foundation after expanding his personal Great Strides team to a national corporate team.

    Topics:

    • Great Strides
    • ,
    • Fundraising
  2. CF Advocate Serves as Witness at Congressional Hearing on Pre-Existing Conditions

    February 6, 2019

    Chad Riedy, an adult with cystic fibrosis, served as a witness on Wednesday before the House of Representatives' Education & Labor Committee at a hearing on the threats faced by workers with pre-existing conditions.

    Topics:

    • Advocacy
  3. CF Foundation Expands Funding Up to $4.5 Million to Talee Bio Inc. to Develop CFTR Mutation-Agnostic Gene Therapy

    January 24, 2019

    The Cystic Fibrosis Foundation awarded Talee Bio Inc. up to $4.5 million to develop methods for delivering potential gene therapy treatments to the lungs.

    Topics:

    • Drug Pipeline
  4. CF Foundation Responds to Court Decision to Overturn the ACA

    December 17, 2018

    On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

    Topics:

    • Heath Care Reform
    • ,
    • Advocacy
  5. Golf Enthusiasts and Celebrities Raise $750K at the 24th Annual Ultimate Golf Experience

    December 4, 2018

    The 24th annual Ultimate Golf Experience brought together a standout array of entertainers, guests, and friends of the Cystic Fibrosis Foundation for a premier golfing event to raise funds in the fight against cystic fibrosis.

    Topics:

    • Get Involved
    • ,
    • Fundraising
  6. Positive Late Stage Study Results for Next-Generation, Triple-Combination Modulator

    November 27, 2018

    Today, Vertex Pharmaceuticals Inc. released the initial Phase 3 clinical trial data for one of two next-generation, triple-combination modulators currently being tested.

    Topics:

    • Research News
    • ,
    • Drug Pipeline
    • ,
    • Clinical Trials
  7. Doing Well by Doing Good: Mastercard Ranks as Top Corporate Sponsor for the Greater New York Chapter

    November 15, 2018

    For the second year, Mastercard® becomes the Greater New York Chapter's top corporate sponsor thanks to two senior level executives personally affected by cystic fibrosis who initially connected employees to the mission of the Cystic Fibrosis Foundation.

    Topics:

    • In the Spotlight
  8. CF Foundation Announces 2018 Impact Grant Recipients

    October 10, 2018

    Recipients include eight innovative programs from around the country that serve the CF community.

    Topics:

    • Get Involved
  9. Support for Those Impacted by Hurricane Michael

    October 9, 2018

    The Cystic Fibrosis Foundation is offering two vital resources to support CF families who may be affected by Hurricane Michael.

    Topics:

    • Patient Assistance
  10. The Warren Alpert Foundation and Harvard Medical School Recognize CF Research Pioneers

    October 4, 2018

    On Oct. 4, the Warren Alpert Foundation honored five CF scientists, including Dr. Francis Collins, for their trailblazing work in CF research. The Foundation received special acknowledgement for our role in driving this progress, marking the first time that an organization has been recognized by the Alpert Foundation.

    Topics:

    • In the Spotlight
  11. Resources for Those Impacted by Hurricane Florence

    September 11, 2018

    In the wake of Hurricane Florence, the Cystic Fibrosis Foundation is offering two vital resources to support CF families affected by this hurricane and its surge.

    Topics:

    • Patient Assistance
  12. FDA Approves Kalydeco® for Children With CF Ages 1 to 2

    August 15, 2018

    Today, the U.S. Food and Drug Administration approved the use of ivacaftor (Kalydeco®) for children with cystic fibrosis ages 1 to 2 who have at least one mutation that is responsive to ivacaftor.

    Topics:

    • Research News
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